Tag Archives: recovery

PACE trial claims of recovery are not justified by the data: a rejoinder to Sharpe, Chalder, Johnson, Goldsmith & White

Following a response from the PACE trial researchers to their re-analysis from the PACE trial researchers Wilshire et al have published a reply: Article abstract:  BACKGROUND: Recently, we critically evaluated the claim from the PACE trial that cognitive behavioural therapy (CBT) and graded … Continue reading

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The full independent re-analysis of the PACE Trial now available on open access

ME Association blog post, 22 March 2017: Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper, 22 March 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the … Continue reading

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‘Betwixt & between’ liminality in recovery stories from people with ME or CFS

Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading

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Recovering from CFS & FM – The Lerner Way

Health rising blog post, by Cort Johnson, Aug 12, 2016: Recovering from Chronic Fatigue Syndrome and Fibromyalgia – The Lerner Way Recovery Recoveries or near recoveries from chronic fatigue syndrome (ME/CFS) and/or fibromyalgia don’t happen often but they do occur.  … Continue reading

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Dr Fred Friedberg on the meaning of ‘recovery’ in the PACE trial

Dr Fred Friedberg, IACFS/ME President comments: In a significant development regarding the controversial PACE trial, the largest and most influential behavioral treatment trial of CFS/ME to date, a recent open letter to the editor of the Lancet was published by a distinguished group of … Continue reading

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Do people with ME and CFS really recover?

The Recovery Question, by Dan Neuffer in Health Rising Forum, Sep 17 2015 There is much information out there on how to diagnose Fibromyalgia Syndrome (FMS) or Chronic Fatigue Syndrome (CFS) (also described as Myalgic Encephalomyelitis or ME). And whilst … Continue reading

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Defining recovery in children

Research abstract: Aims:  To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods:  We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading

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Good recovery rates for ME/CFS following Glandular fever

Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath in his blog Phoenix Rising shares results from a long-term follow-up study from Haukeland University Hospital in Norway … “When will this end?” It’s a question that most ME/CFS patients have … Continue reading

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Defining recovery in CFS

Abstract INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require “normalization of symptoms and … Continue reading

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Recovery rates from CFS following CBT

Research Abstract Highlights This study investigates recovery from CFS in a routine practice. Approximately 18% of people with CFS recover after CBT. The study of CBT in routine practice demonstrated recovery rates akin to RCTs. Cognitive behavioural therapy (CBT) is … Continue reading

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