Author Archives: wames
Music 4 ME: an album of songs & poetry to raise money for ME education & research
Music 4 ME – raising funds for education & research Music 4 M.E is an album of original songs and poetry composed and performed by people with M.E and their Carers or family about their experiences of living with M.E. The … Continue reading
#TimeForUnrestWales – funding from the Oakdale Trust
A big thank you to the Oakdale Trust The Oakdale Trust has given WAMES a grant of £1,000 to help us represent people with ME as we campaign for recognition and better services. This will enable us to continue travelling to meetings, … Continue reading
#TimeForUnrestWales – #StopIgnoringME campaign
MESiG’s #StopIgnoringME campaign aims to visually display symptoms that go ignored as a result of the invisible aspect of the illness e.g. dizziness, depression, insomnia, clumsiness, cognitive symptoms… ME/CFS is under recognised and massively underfunded, and through the campaign #StopIgnoringME … Continue reading
International #MillionsMissing Visibility action in Geneva, May 12 2018
#MillionsMissing on May 12th a day of global action that calls for health equality for everyone with ME On Saturday 12 May, representatives from around the world will gather at Place des Nations in Geneva at 12pm, at the Broken Chair … Continue reading
CFS treatment ‘should be withdrawn’
BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading
BBC Newsbeat documentary: M.E. and me
BBC Newsbeat film: M.E. And Me Presenter Emma Donohoe was diagnosed with M.E. when she was 19, an illness which many doctors don’t understand and people still talk about as “yuppy flu” – thinking sufferers are being lazy or too depressed … Continue reading
Patients with CFS do not score higher on the autism-spectrum quotient than healthy controls
Patients with chronic fatigue syndrome do not score higher on the autism-spectrum quotient than healthy controls: Comparison with autism spectrum disorder, by Indre Bileviciute‐Ljungar, Daniel Maroti, Susanne Bejerot in Scandanavian Journal of Psychology 2018 May 8 Research abstract: Clinically, there … Continue reading
ME Awareness week 7-13 May 2018 – campaign season!
ME Awareness week 7-13 May 2018 – campaign season! International ME Awareness day began in 1993. American Tom Hennessey chose the birthdate of Florence Nightingale, as she was stricken by an ME-type illness in her 30s and was often … Continue reading
Childhood sleep & adolescent CFS/ME
Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading
Are probiotic treatments useful on FM or CFS patients?
Review abstract: Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review, by P. Roman, F. Carrillo-Trabalón, N. Sánchez-Labraca, AF Estévez, D. Cardona in Benef Microbes. 2018 Apr 26:1-10 [Epub ahead of print] Evidence suggests … Continue reading
