Author Archives: wames

Mark Tami MP took the ME/CFS chilli challenge

On twitter, Oct 6, Mark Tami AM said: No video unfortunately but I took part in the chilliMEchallenge @MECFS_Challenge. Now I’m nominating @AlynDeesideAM More info about the chilli challenge

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Association between cognitive performance & pain in CFS

Research abstract: BACKGROUND: In addition to the frequently reported pain complaints, performance-based cognitive capabilities in patients with chronic fatigue syndrome (CFS) with and without comorbid fibromyalgia (FM) are significantly worse than those of healthy controls. In various chronic pain populations, … Continue reading

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Do people with ME and CFS really recover?

The Recovery Question, by Dan Neuffer in Health Rising Forum, Sep 17 2015 There is much information out there on how to diagnose Fibromyalgia Syndrome (FMS) or Chronic Fatigue Syndrome (CFS) (also described as Myalgic Encephalomyelitis or ME). And whilst … Continue reading

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Key issues for understanding ME, biological markers & diagnostic criteria

Review abstract: Myalgic Encephalomyelitis (ME) continues to cause significant morbidity worldwide with an estimated one million cases in the United States. Hurdles to establishing consensus to achieve accurate evaluation of patients with ME continue, fuelled by poor agreement about case definitions, … Continue reading

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ACT (Acceptance and commitment therapy) for CFS

Research abstract: Acceptance is understood to be an important element in coping and  living with chronic illnesses such as diabetes and chronic pain, and increasing acceptance has been related to a number of positive  outcomes such as reduced symptoms as well … Continue reading

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Effect on siblings of children with CFS/ME

Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading

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Low NK cell activity differs in ME/CFS & MS

Research abstract: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Multiple Sclerosis (MS) patients suffer from debilitating fatigue which is not alleviated by rest. In addition to the fatigue related symptoms suffered by CFS/ME and MS patients, dysfunction of the immune system … Continue reading

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Poor quality of life in young people with ME/CFS

An ME Research UK article comments on the recent research in Norway into adolescents with CFS: For such a devastating illness, there is surprisingly little information in the scientific literature about patients’ experiences of living with ME/CFS day-to-day. The few … Continue reading

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Teenage kickboxer with CFS

Caerphilly teen kickboxer to defend world crown, by Caio Iwan in South Wales Argus online, Wednesday 5 August 2015 A TEENAGE kickboxer from Pontllanfraith is set to travel to Germany to defend her world crown – despite nearly having her … Continue reading

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Severe ME day Saturday 8 August 2015

WAMES invites you to join with them and the 25% ME Group to raise awareness of the home care needs of people with severe ME. Many severely affected people in Wales struggle to help professionals understand the extent of their need … Continue reading

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