Category Archives: News
mapMECFS: new opportunities for discovery for ME/CFS researchers
mapMECFS – an interactive data portal … providing access to research results across many biological disciplines from studies that are focused on advancing our understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). The mapMECFS website serves as the … Continue reading
World ME Alliance writes to WHO re long COVID definition
Will the World Health Organization’s long COVID definition help or hinder? WAMES has joined other members of the World ME Alliance in writing to the World Health Organization (WHO) concerning their recently published definition of “post COVID-19 condition”, commonly … Continue reading
Diagnostic test research: Saliva fatigue biomarker for severe ME/CFS
Saliva fatigue biomarker index as a marker for severe myalgic encephalomyelitis/ chronic fatigue syndrome in a community based sample, by Leonard A Jason, John Kalns, Alicia Richarte, Ben Z Katz, Chelsea Torres in Fatigue: Biomedicine, Health & Behavior, October 27, 2021 … Continue reading
Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare
WAMES asks NHS Wales: Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: … Continue reading
NICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change
NICE 2021 ME/CFS guideline – Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are … Continue reading
Research review: CFS & cardiovascular disease
Chronic Fatigue Syndrome and cardiovascular disease: JACC state-of-the-art review, by Benjamin H Nateleson, Danielle L Brunjes, Donna Mancini in Journal of the American College of Cardiology Vol 78, #10, pp 1056–1067, Sep 7, 2021 Review highlights ME/CFS, a clinical entity … Continue reading
NICE ME/CFS guideline – ME community expresses hope & caution
NICE ME/CFS guideline Cautious welcome from WAMES & the ME community WAMES welcomes the publication of the 2021 NICE guideline for ME/CFS and the decision by NICE to ‘follow the science’ regarding the inappropriateness of GET and CBT as treatments … Continue reading
Research: Cerebral blood flow remains reduced after tilt testing in ME/CFS patients
Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/ chronic fatigue syndrome patients, by C Linda MC van Campen, Peter C Rowe, Frans C Visser in Clinical Neurophysiology Practice Vol 6, 2021, Pages 245-255 [doi.org/10.1016/j.cnp.2021.09.001] Highlights Cerebral … Continue reading
