Category Archives: News

A demon on my life – a play about ME

A demon on my life – a play about ME     A play written by JB Bruno has been premiered online and is now available to watch on YouTube.   “A demon on one’s life. What a ripe metaphor for … Continue reading

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Dental considerations for a patient with ME/CFS – a case study

Dental considerations for a patient with Myalgic Encephalopathy/ Chronic Fatigue Syndrome – a case study, by Serena Halsall in Journal of Disability and Oral Health Vol 20, #3  October 1, 2019   Abstract Myalgic Encephalopathy, also known as Chronic Fatigue … Continue reading

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“Long Haulers” to the rescue? Barrage of Covid-19 media stories, studies & registries spells hope for ME/CFS

Health rising blog post, by Cort Johnson: “Long Haulers” to the rescue? Barrage of Covid-19 media stories, studies and registries spells hope for ME/CFS, 5 July 2020   Media Barrage A veritable avalanche of stories – the C19Recovery Awareness website … Continue reading

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Energy systems & pacing in ME/CFS

Frozen in Amber blog post, by Caroline Elisabeth: Energy systems and pacing in ME/CFS, 29 June 2020   Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as … Continue reading

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DNA Methylation & BDNF expression account for symptoms & widespread hyperalgesia in patients with CFS & FM

DNA Methylation and BDNF Expression account for symptoms and widespread hyperalgesia in patients with Chronic Fatigue Syndrome and Fibromyalgia, by Andrea Polli, Manosij Ghosh, Jelena Bakusic, Kelly Ickmans, Dora Monteyne, Brigitte Velkeniers, Bram Bekaert, Lode Godderis, Jo Nijs in Arthritis … Continue reading

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Protective effect of hemin against experimental CFS in mice: possible role of neurotransmitters

Protective effect of hemin against experimental Chronic Fatigue Syndrome in mice: possible role of neurotransmitters, by Vandana Thakur, Sumit Jamwal, Mandeep Kumar, Vikrant Rahi & Puneet Kumar  in Neurotoxicity Research (2020) [doi.org/10.1007/s12640-020-00231-y]   Research abstract: Chronic fatigue syndrome (CFS) is … Continue reading

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Post-viral fatigue and COVID-19: lessons from past epidemics

Post-viral fatigue and COVID-19: lessons from past epidemics, by Mohammed F Islam, Joseph Cotler,  & Leonard A Jason in Fatigue: Biomedicine, Health & Behavior 25 Jun 2020 [doi.org/10.1080/21641846.2020.1778227]   Review Abstract: The COVID-19 pandemic, resulting from Severe Acute Respiratory Syndrome Coronavirus 2 … Continue reading

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Preliminary ICF core set for patients with ME/CFS in rehabilitation medicine

Preliminary ICF core set for patients with myalgic encephalomyelitis/chronic fatigue syndrome in rehabilitation medicine, by Indre Bileviciute-Ljungar, Marie-Louise Schult, Kristian Borg, Jan Ekholm in J Rehabil Med 2020; 52: jrm0000X [DOI:10.2340/16501977-2697]   Lay Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is … Continue reading

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Clinical history segment extraction from CFS assessments to model disease trajectories

Clinical history segment extraction from Chronic Fatigue Syndrome assessments to model disease trajectories by Sonia Priou, Natalia Viani, Veshalee Vernugopan, Chloe Tytherleigh, Faduma Abdalla Hassan, Rina Dutta, Trudie Chalder, Sumithra Velupillai in Digital Personalized Health and Medicine, Vol 270, pp … Continue reading

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NICE ME/CFS Guideline to be published April 2021

NICE ME/CFS Guideline to be published April 2021   WAMES has received notification from NICE about the dates the stakeholder meetings will reconvene, and the proposed publication date of the revised ME/CFS clinical guideline.   24/6/20 Dear Stakeholder, As you … Continue reading

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