Category Archives: News
The origin of International ME Awareness Day
The origin of International ME Awareness Day – May 12th Excerpt from: MAY 12th International Awareness Day “If a cause and cure are to be found for ME/CFS, FM, MCS and related illnesses in the near future, government and … Continue reading
Poem: A nurse with ME
ME Awareness Week: A nurse with ME – a poem by L Mair Jones As we acknowledge the contribution of nurses on International Nurses Day, we remember that nurses too can be confined to home with a virus. … Continue reading
35 year-old living in aged care reveals what life is like inside during this pandemic (Aus)
ME Awareness week: Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic From SBS News Insight (Australia) by Ketra Wooding, 9 May 2020: Ketra has been forced to live in an aged care facility due … Continue reading
‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME
ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading
Video: I got a virus, I didn’t die, but I never recovered
ME Awareness Week: I got a virus, I didn’t die, but I never recovered #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading
Covid-19 or ME crash? – Kay’s story
ME Awareness Week: Covid-19 or ME crash? – Kay’s story ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading
This is International ME Awareness Day – 12 May 2020
May 12th is International ME Awareness Day Myalgic Encephalomyelitis is the most common disease people have never heard of! Estimated number of people with ME: Wales 13,000 UK 250,000 World 17-24 million Every year, for a week surrounding May 12th, … Continue reading
More to experience during Lockdown- Karen & Mike’s ME story
ME Awareness Week: More to experience during Lockdown – Karen & Mike’s ME story I live with my husband in mid-Wales and we both have ME, having met because of it 23 years ago (through the ME Singles Group) … Continue reading
Patients at higher risk of developing ME after COVID-19 diagnosis
ME Awareness Week University of Leicester blog post: Patients at higher risk of developing ME after COVID-19 diagnosis, by Dr Nicola Clague-Baker, 6 May 2020 Patients who have had coronavirus could be at higher risk of developing Myalgic Encephalomyelitis … Continue reading
Edwyn’s ME Lockdown
ME Awareness Week: Edwyn’s thoughts on ME This has ruined my life and I am disgusted that not enough money goes into research for ME. Edwyn, 15 years old, Mid Wales Edwyn’s ME Lockdown view all day, every … Continue reading
