Tag Archives: Dr Esther Crawley
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
CFS and chronic widespread pain in adolescence
Research highlights: 14.6% of adolescents with CFS also experienced chronic widespread pain Females twice as likely to have CFS or CWP Exclusive CFS (vs non-CFS) was associated with higher levels of reported pain and greater effect of pain This association … Continue reading
FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
A qualitative study of depression in young people with CFS/ME
Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading
Review of treatment for depression in paediatric CFS or ME
Review abstract: Objectives: At least 30% of young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) also have symptoms of depression. This systematic review aimed to establish which treatment approaches for depression are effective and whether comorbid depression mediates outcome. Setting: … Continue reading
Obesity in adolescents with CFS
Research abstract: Objective: Identify the prevalence of obesity in patients with chronic fatigue syndrome (CFS) compared with healthy adolescents, and those identified with CFS in a population cohort. Design: Cross-sectional analysis of multiple imputed data. Setting: Data from UK paediatric CFS/myalgic encephalomyelitis … Continue reading
MAGENTA: GET for teenagers research trial protocol
Research protocol abstract: Introduction: Paediatric chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a relatively common and disabling condition, yet there is a limited evidence base for treatment. There is good evidence that graded exercise therapy is moderately effective in … Continue reading
Eating difficulties in adolescents with CFS/ME
Research abstract: BACKGROUND: An estimated 10% of children and adolescents with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience eating difficulties; however, little is known about why these difficulties develop, what the impact is or how to manage them. METHODS: Semi-structured interviews … Continue reading
Chronic fatigue affects 1.9% of 16 year olds & is more common with family adversity
Research abstract: BACKGROUND: In the Avon Longitudinal Study of Parents and Children (ALSPAC) birth cohort, chronic disabling fatigue lasting ≥6 months affected 1.3% of 13-year-olds, was equally common in boys and girls, and became more prevalent with increasing family adversity. … Continue reading
