Tag Archives: NICE guideline ME/CFS
NICE draft ME/CFS guideline says CBT not a cure for ME/CFS!
Draft NICE ME/CFS Guideline: Cognitive Behavioural Therapy The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder WAMES will be responding to this … Continue reading
NICE draft ME/CFS guideline says NO to graded exercise therapy (GET) cure!
NICE draft ME/CFS guideline now out for consultation The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder WAMES will be responding to … Continue reading
NICE ME/CFS Guideline consultation will begin 10 Nov 2020
Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT www.nice.org.uk Tel: 0300 323 0140 Fax: 0845 003 7784 10/09/2020 Dear Colleague, RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy) /chronic fatigue syndrome: diagnosis and management. The economic plan, review questions … Continue reading
NICE ME/CFS guideline publication due April 21 2021
Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT Tel: 0300 323 0140 Fax: 0845 003 7784 www.nice.org.uk 24/8/20 Dear stakeholder, Please note that the timeline for the Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management guideline has … Continue reading
NICE Statement about graded exercise therapy in the context of COVID-19
Statement about graded exercise therapy in the context of COVID-19 NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading
Margaret, Countess of Mar, & ME advocate, retires
ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading
Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
NICE call for evidence of management strategies & review methods for ME/CFS
NICE call for evidence NICE guidance: Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management In development [GID-NG10091] Expected publication date: 14 October 2020 Consultation: Call for evidence What we need: We need evidence from the areas listed below for … Continue reading
CBT & GET patient survey – ends 31 Jan 2019
CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading
Updated NICE guideline committee list
NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018. The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading