Tag Archives: MAGENTA trial

MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Posted on 08/02/2019 by wames

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading →

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CFS, Bristol University, & controversial science

Posted on 07/18/2017 by wames

The Bristol Cable blog post, by Lorna Stephenson, 7 July 2017: Chronic fatigue syndrome, Bristol University, and controversial science, Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid … Continue reading →

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Children with ME need relevant science, not pressure to do more, more, more

Posted on 01/26/2017 by wames

Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading →

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FITNET & PACE in the media continue to incite controversy

Posted on 11/08/2016 by wames

BBC Radio Scotland: The Kaye Adams show on  7 November 2016 included an hour long discussion of ME and the PACE trial.  Available to listen to until 6 December. Speakers were an American writer Julie Rehmeyer, and the ME Association’s medical adviser Dr … Continue reading →

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MAGENTA trial for children – issues to be considered

Posted on 09/27/2016 by wames

Mind the brain blog post, by Prof James Coyne, 23 September 2016: Before you enroll your child in the MAGENTA chronic fatigue syndrome study: Issues to be considered Petitions are calling for shutting down the MAGENTA trial. Those who organized the … Continue reading →

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UK and global petitions to stop GET trials for ME/CFS

Posted on 09/14/2016 by wames

The ME Action network has launched a campaign to stop trials into Graded Exercise Therapy (GET): stopget.org UK citizens can sign a petition against all trials for GET on the UK government website: Suspend all trials of graded exercise therapy in children … Continue reading →

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MAGENTA: GET for teenagers research trial protocol

Posted on 07/08/2016 by wames

Research protocol abstract: Introduction: Paediatric chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a relatively common and disabling condition, yet there is a limited evidence base for treatment. There is good evidence that graded exercise therapy is moderately effective in … Continue reading →

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MAGENTA trial – PACE for children

Posted on 02/19/2016 by wames

Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading →

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