Author Archives: wames
Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence & EUROMENE research recommendations for epidemiology
Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence and EUROMENE research recommendations for epidemiology, by Fernando Estévez-López, Kathleen Mudie, Xia Wang-Steverding, Inger Johanne Bakken, Andrejs Ivanovs, Jesús Castro-Marrero, Luis Nacul, Jose Alegre, Paweł Zalewski, Joanna Słomko, … Continue reading
Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading
The feasibility & acceptability of an early intervention in primary care to prevent CFS in adults
The feasibility and acceptability of an early intervention in primary care to prevent chronic fatigue syndrome (CFS) in adults: randomised controlled trial, by Hazel O’Dowd, Lucy Beasant, Jenny Ingram, Alan Montgomery, Will Hollingworth, Daisy Gaunt, Simon M Collin, Sarah Horne, … Continue reading
Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review
Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review, by Anne Marit Mengshoel, Ingrid Bergliot Helland, Mira Meeus, Jesus Castro-Marrero, Derek Pheby & Elin Bolle Strand in International Journal of Qualitative Studies … Continue reading
Difficulties of living with an illness not considered a “Disease”: focusing on the illness behavior of ME/CFS patients
Difficulties of living with an illness not considered a “Disease”: Focusing on the illness behavior of myalgic encephalomyelitis/chronic fatigue syndrome patients, by Natsuko Nojima in Departmental Bulletin Paper, Osaka Human Sciences Vol.6 Paper abstract: This paper focuses on the … Continue reading
Save4Children – helping children with ME in psychiatric wards
Save4Children – helping children with ME in psychiatric wards The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading
New ME/CFS training module for doctors & medical students
New CPD: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, May 13, 2020 A new training module for doctors and medical students has been developed by the CMRC Medical Education Group led by Dr Nina Muirhead, and leads to the award of 1 … Continue reading
My ME lockdown with the invisible “terrible triplets”
ME Awareness week: My ME lockdown with the invisible “terrible triplets” I have been living in ME lockdown on my own, yet it doesn’t feel as though I am alone. My lockdown experience started long before Covid-19 appeared on … Continue reading
Poem: Words escape
ME Awareness week: Words escape, a poem by Derryan Paul ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading