Author Archives: wames

Health-related quality of life in Norwegian adolescents living with CFS

Health-related quality of life in Norwegian adolescents living with Chronic Fatigue Syndrome, by  Wenche Ann Similä, Vidar Halsteinli, Ingrid B Helland, Christer Suvatne, Hanna Elmi, Torstein Baade Rø in Health Qual Life Outcomes. 2020 Jun 5;18(1):170 [doi: 10.1186/s12955-020-01430-z]   Research … Continue reading

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The Health Minister, Covid-19, ME, rehabilitation & NICE

The Health Minister comments on Covid-19, ME, rehabilitation & NICE   The Health Minister Vaughan Gething has replied to the letter WAMES sent to him on International ME Awareness Day highlighting the links between Covid-19, PVFS and ME, and requesting … Continue reading

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The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco

The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807]   Article abstract: In a … Continue reading

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Metabolic dysfunction in ME/CFS not due to anti-mitochondrial antibodies

Metabolic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome not due to anti-mitochondrial antibodies, by Isabell Nilsson, Jeremy Palmer, Eirini Apostolou, Carl-Gerhard Gottfries, Muhammad Rizwan, Charlotte Dahle and Anders Rosén in Front. Med., 31 March 2020 [doi.org/10.3389/fmed.2020.00108 ]   Research abstract: Metabolic profiling … Continue reading

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Modeling disability: softly making the invisible visible

Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74   Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading

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Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort

Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort, by Maria Elizabeth Loades, Katharine A Rimes, Trudie Chalder in Clinical Child Psychology and Psychiatry, May 22 2020 [doi.org/10.1177/1359104520918364]   Research abstract: Sleep problems have … Continue reading

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Review of the quality control checks performed by current genome-wide & targeted-genome association studies on ME/CFS

Review of the quality control checks performed by current genome-wide and targeted-genome association studies on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Nuno Sepulveda, Anna D Grabowska, Eliana M Lacerda, Luis C Nacul in Frontiers in Pediatrics. May 7, 2020 [doi: 10.3389/fped.2020.00293 … Continue reading

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Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence & EUROMENE research recommendations for epidemiology

Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence and EUROMENE research recommendations for epidemiology, by Fernando Estévez-López, Kathleen Mudie, Xia Wang-Steverding, Inger Johanne Bakken, Andrejs Ivanovs, Jesús Castro-Marrero, Luis Nacul, Jose Alegre, Paweł Zalewski, Joanna Słomko, … Continue reading

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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae

Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading

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The feasibility & acceptability of an early intervention in primary care to prevent CFS in adults

The feasibility and acceptability of an early intervention in primary care to prevent chronic fatigue syndrome (CFS) in adults: randomised controlled trial, by Hazel O’Dowd, Lucy Beasant, Jenny Ingram, Alan Montgomery, Will Hollingworth, Daisy Gaunt, Simon M Collin, Sarah Horne, … Continue reading

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