Category Archives: News
Could one gene help explain ME/CFS, FM, POTS, IBS, EDS, IBS and others?
ME/CFS, FM, POTS, IBS, EDS and others often exist in a kind of swarm of interconnected illnesses. All have been maligned at one time or another because of the wide range of symptoms they produce. How could a biological disease … Continue reading
Severe ME in Australia: suffering ignored and denied help
ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading
Welsh Ambulance Trust booklet & app to aid communicating health needs
In 2013 The Welsh Ambulance Trust developed a bilingual Pre Hospital Communication Guide in the form of a small booklet. They have now developed an App version of the guide, which is available for everyone to use, you can download … Continue reading
Dr Bested’s experience of treating gut symptoms in ME/CFS
Altered Gut Microbiome in ME/CFS, by Alison C Bested, October 2016 In 2007 as a doctor specialized in treating patients with Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS), I was curious to see if there was a relationship of the … Continue reading
NICE takes a dim view of foreign work on ME/CFS
ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading
The ‘extreme’ side-effects of antidepressants
BBC news article, By Lesley Ashmall (BBC Victoria Derbyshire programme), 19 October 2016: The ‘extreme’ side-effects of antidepressants Claire Hanley says she tried to take her own life twice after taking antidepressants People who say their lives have been ruined by … Continue reading
Nose & throat inflammation & HPV vaccinations in ME
ME Research UK article, 19 October 2016: Nose and throat inflammation There are many different triggers for ME/CFS. In most people, the illness starts with an infection, often viral, but others report a vaccination or immunisation as the initial event. … Continue reading
Perceptions of Myalgic Encephalomyelitis
Miscellanea blog post by Robert McMullen, September 2016: “Perceptions of Myalgic Encephalomyelitis” A person with ME looks back at his experiences and at some prejudices that exist about people with ME in society and the medical profession. Excerpt: Before I was ill, … Continue reading
Privacy on long term condition health discussion forums
Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading
Prof Jonathan Edwards comments on MEGA Big study oppostition
Opposing MEGA blog comment by Professor Jonathan Edwards about OMEGA Petition, 20 October 2016 Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine, commented on a Discussion – Petition: Opposing MEGA I was very concerned that a counter petition of this sort would be an own goal. However, … Continue reading
