Category Archives: News
PACE trial results were grossly exaggerated
Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading
Patient perceptions regarding possible changes to the name & criteria for CFS & ME
Research article abstract: For decades, researchers and patients have been debating the terms and criteria for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). This has led to considerable difficulties in clearly communicating to the public the nature of these … Continue reading
Get your MillionsMissing twibbon
Download the #MillionsMissing twibbon. Add the #MillionsMissing filter to your photo on Facebook and Twitter! All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest … Continue reading
ME/CFS history, diagnostic criteria & prevalence – new e-book
E-book by Mary Gloria C. Njoku, 1 Sep 2016: Myalgic, Encephalomyelitis/Chronic Fatigue Syndrome: History, Diagnostic Criteria and Prevalence ISBN: 978-1-4689-7326-6 Foreword by Prof Leonard Jason Overview: This work is a comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) studies that were … Continue reading
Choosing wisely Wales: patients in Wales urged to take more control
BBC news article, by Owain Clarke, 16 September 2016: Choosing Wisely aims for doctor-patient ‘culture shift’ Patients in Wales are being urged to take more control of decisions about the care and treatments they receive, as part of a new … Continue reading
Viruses and CFS: statement by Prof Ron Davis
Open Medicine Foundation blog post, 9 Sep 2016: Viruses and CFS: Statements by Ron Davis and Bob Naviaux Prof Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear … Continue reading
MPs call for medical cannabis to be made legal
BBC news article, by Michelle Roberts, 13 September 2016: MPs call for medical cannabis to be made legal Taking cannabis for medical reasons should be made legal, says a cross-party group of UK politicians. The All Party Parliamentary Group on … Continue reading
A better way to measure ME/CFS experience is needed
Research abstract: PURPOSE: Debilitating fatigue is a core symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS); however, the utility of patient-reported symptom outcome measures of fatigue for ME/CFS patients is problematic due to ceiling effects and issues with reliability and validity. … Continue reading
