Category Archives: News
Perceptions of Myalgic Encephalomyelitis
Miscellanea blog post by Robert McMullen, September 2016: “Perceptions of Myalgic Encephalomyelitis” A person with ME looks back at his experiences and at some prejudices that exist about people with ME in society and the medical profession. Excerpt: Before I was ill, … Continue reading
Privacy on long term condition health discussion forums
Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading
Prof Jonathan Edwards comments on MEGA Big study oppostition
Opposing MEGA blog comment by Professor Jonathan Edwards about OMEGA Petition, 20 October 2016 Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine, commented on a Discussion – Petition: Opposing MEGA I was very concerned that a counter petition of this sort would be an own goal. However, … Continue reading
The real story about CFS: a devastating illness that needs a better name
Garnet news article by Maureen Hanson, 19 October 2016: The real story about Chronic Fatigue Syndrome: a devastating illness that needs a better name Chronic Fatigue Syndrome is an illness that many may have heard of, but few, in reality, know … Continue reading
Elevated energy production by non-mitochondrial sources in CFS sub-group
Research abstract: Chronic Fatigue Syndrome (CFS) is a debilitating disease characterized by physical and mental exhaustion. The underlying pathogenesis is unknown, but impairments in certain mitochondrial functions have been found in some CFS patients. To thoroughly reveal mitochondrial deficiencies in … Continue reading
Case report of differences between twins where only one has ME
Case report abstract: BACKGROUND: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with profound fatigue, flu-like symptoms, pain, cognitive impairment, orthostatic intolerance, and post-exertional malaise (PEM), and exacerbation of some or all of the baseline symptoms. CASE REPORT: We report … Continue reading
Dr Mark Porter on the challenge of IBS, pregabalin & BAD
The Times article, by Dr Mark Porter, 18 October 2016: Not all of the six million Brits who think they have IBS need to hang on for the new wonder drug “Part of the challenge is that IBS is unlikely … Continue reading
A qualitative study of depression in young people with CFS/ME
Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading
My final year at Oxford, when I felt punished for having ME
Guardian article by Nathalie Wright & Alice Woolley, 18 October 2016: My final year at Oxford, when I felt punished for having ME For centuries Oxford has ‘rusticated’ students – expelled them to their family home in the country – … Continue reading
Prof Hooper challenges value of CBT for ME
Article by Prof Malcolm Hooper, 15 October 2016: A response to Professor Fred Friedberg’s editorial about CBT Professor Fred Friedberg asks why cognitive behavioural therapy (CBT) is so vilified in the chronic fatigue syndrome community. He opens his Editorial by stating: … Continue reading
