Category Archives: News
Video interview with parent Mary Dimmock about her son and rituximab
Episode 78 of Llewellyn King’s ME/CFS Alert videos interviews Mary Dimmock, whose son has ME and who is receiving RITUXAN (rituximab) treatment privately. (24 mins)
An examination of an ME online community discussion
Research abstract: Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of … Continue reading
The Toll-Like Receptor Radical Cycle Pathway – the key to drug treatment for secondary chronic fatigue
Review abstract: In this review we discuss that peripheral and central activation of the Toll-like receptor 2/4 (TLR2/4) Radical Cycle may underpin the pathophysiology of immune-related chronic fatigue secondary to other medical diseases and conditions. The TLR Radical Cycle plays … Continue reading
New clinical guidelines for ME/CFS from Alberta, Canada
New Clinical Practice Guidelines for ME/CFS have been produced in Alberta, Canada drawing on the Canadian consensus criteria, IOM guidelines and recent research findings: Identification and symptom management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Quote from p6: In summary, … Continue reading
Patients with CFS have significant measureable sleep problems
Research abstract: Background: Sleep disturbance affects almost 95% of people with chronic fatigue syndrome (CFS). However, existing studies of sleep in CFS have shown mixed results and methodological issues prevent between-study comparisons. Purpose: To redress this, the present study aimed to investigate whether … Continue reading
What I’m really thinking: the person with ME
Guardian article, by Anonymous, 16 April 2016: What I’m really thinking: the person with ME It is sometimes called chronic fatigue syndrome, but that’s a bit of a misnomer. I’m not just tired I have myalgic encephalomyelitis. If you think it … Continue reading
A person with ME responds to MS drug Copaxone
A Chronic Fatigue Syndrome/POTS Patient Responds to a Multiple Sclerosis Drug – What Does It Mean? Discussion started by Cort Johnson, Mar 30, 2016 on Health Rising blog: Before 2002 Rachel owned two businesses, had boundless energy, worked out with … Continue reading
Treatment expectations influence the outcome
Research abstract: OBJECTIVE: To improve the effectiveness of treatment in patients with chronic fatigue syndrome it is worthwhile studying factors influencing outcomes. The aims of this study were (1) to assess the association of expectancy and credibility on treatment outcomes, … Continue reading
PLOS One journal restates position on data sharing to Prof Coyne
In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting an … Continue reading
The misrepresentation of ME in nursing
Article abstract: Re : Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading
