Category Archives: News
The psychological impact of dependency in adults with CFS
Research abstract: Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily … Continue reading
Methods of evaluating ME interventions
Research abstract: INTRODUCTION The current study provides data from two patients with myalgic encephalomyelitis, who charted several of their symptoms over time. CASE PRESENTATION Each patient charted domains that were relevant to them, and they were attempting to assess the … Continue reading
Women assess quality of healthcare services in Norway
Research abstract: Objective: To test the association between self-rated health and self-rated degree of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), and CFS/ME patients’ assessment of quality of primary care, specialist care and coordination of care. Design: Cross-sectional study. Setting: Self-reported questionnaire … Continue reading
ME and rituximab in Notodden Norway
ME-foreldrene blog: Lecture by Hanne Thürmer, Notodden. RituxME and current development, 13 April 2016 Lecture by dr Hanne Thürmer, Notodden Hospital Original in Norwegian/Norsk original From a lecture given at the local department of the Norwegian ME-association in Notodden, avd … Continue reading
Efficacy of rintatolimod (Ampligen) in CFS/ME
Review abstract: Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, … Continue reading
Are people with ME disabled?
TIPSFORME blog: Are you Disabled?, by Jenny, 15 April 2016 On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is … Continue reading
Video interview with parent Mary Dimmock about her son and rituximab
Episode 78 of Llewellyn King’s ME/CFS Alert videos interviews Mary Dimmock, whose son has ME and who is receiving RITUXAN (rituximab) treatment privately. (24 mins)
An examination of an ME online community discussion
Research abstract: Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of … Continue reading
The Toll-Like Receptor Radical Cycle Pathway – the key to drug treatment for secondary chronic fatigue
Review abstract: In this review we discuss that peripheral and central activation of the Toll-like receptor 2/4 (TLR2/4) Radical Cycle may underpin the pathophysiology of immune-related chronic fatigue secondary to other medical diseases and conditions. The TLR Radical Cycle plays … Continue reading
