Category Archives: News
Gluten sensitivity isn’t a fad
Gluten sensitivity isn’t a fad—it’s a real problem, say scientists, Tuesday, July 07, 2015 from What doctors don’t tell you Not eating wheat is all the rage, and some sceptics regard it as a fashionable fad—but scientists have discovered that … Continue reading
Noncoeliac gluten sensitivity
Research abstract: The past 5 years have seen an increase in the use of a gluten-free diet outside a diagnosis of coeliac disease or IgE-mediated wheat allergy. This trend has led to the identification of a new clinical entity termed … Continue reading
ME/CFS: ethical and unethical uses of NLP
In this article by Nancy Blake, she argues that it is unethical and harmful to use Neuro Linguistic Programming (NLP) to persuade a person with ME to deny the biomedical realities of ME/CFS, to tell them that all will be well … Continue reading
ME/CFS & FM as functionally impairing as major diseases
Cort Johnson writes about research into Functionally Somatic Syndromes on June 1, 2015 in his blog Health Rising: The study urges the need for more research on FSS, a relatively neglected research area. Especially studies on a better understanding of the … Continue reading
Parent carers’ experiences with severe ME
Research abstract: Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent-carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed … Continue reading
Harpist Claire Jones, ME and Scarborough Fair
Welsh harpist Claire Jones talks about her journey with ME and the role of the song Scarborough fair in her recovery, in BBC Radio 4’s series Soul music: Scarborough fair broadcast Sat, 20 June 2015. It is available to listen … Continue reading
Former Llanelli serviceman inspired by ME sufferer mum
Former Llanelli serviceman to take on 11 physical challenges inspired by ME sufferer mum, in Llanelli Star, June 10, 2015 A former serviceman from Llanelli is pushing his body to the limit — taking on 11 gruelling gruelling physical challenges in a … Continue reading
Gwyn Hopkins walks over 1,000 miles for ME research
First published Tuesday 16 June 2015 in Tivyside advertiser by Enfys Bosworth: Gwyn Hopkins is about to pass the one thousand mile mark on her walk to raise money and awareness for ME research. She set off from Cardigan Castle on … Continue reading
Variability in symptoms complicates usefulness of case definitions
Research abstract: Background: Ambiguities in case definitions have created difficulties in replicating findings and estimating the prevalence rates for chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME). Purpose: The current study examined differences in occurrence rates for CFS and ME … Continue reading
ME/CFS – a multisystem disorder
Research abstract: Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, chronic illness that is often disabling. This paper introduces the Chronic Fatigue Initiative, which conducted a large multi-center study to more fully characterize ME/CFS and ultimately to describe and … Continue reading
