Category Archives: News

Research: Understanding the molecular changes of PEM in ME/CFS

Understanding the molecular changes of Post Exertional Malaise in ME/CFS,  by Jemma Elley (Thesis, Bachelor of Biomedical Sciences with Honours). University of Otago, 2021   Research abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , , | Comments Off on Research: Understanding the molecular changes of PEM in ME/CFS

Research review: Immunoglobulin therapy for ME/CFS

Back to the Future? Immunoglobulin therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by  Helen Brownlie and Nigel Speight in Healthcare 2021, 9(11), 1546; [doi.org/10.3390/healthcare9111546]   12 Nov 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)   … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Research review: Immunoglobulin therapy for ME/CFS

Research: The characterization of IL-2 stimulation & treatment of TRPM3… in ME/CFS

Characterization of IL-2 stimulation and TRPM7 pharmacomodulation in NK Cell cytotoxicity and channel Co-Localization with PIP2 in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome patients, by Stanley Du Preez , Natalie Eaton-Fitch, Helene Cabanas, Donald Staines and Sonya Marshall-Gradisnik in Int. J. … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Research: The characterization of IL-2 stimulation & treatment of TRPM3… in ME/CFS

mapMECFS: new opportunities for discovery for ME/CFS researchers

mapMECFS – an interactive data portal … providing access to research results across many biological disciplines from studies that are focused on advancing our understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS).   The mapMECFS website serves as the … Continue reading

Posted in News | Tagged , | Comments Off on mapMECFS: new opportunities for discovery for ME/CFS researchers

World ME Alliance writes to WHO re long COVID definition

Will the World Health Organization’s long COVID definition help or hinder?   WAMES has joined other members of the World ME Alliance in writing to the World Health Organization (WHO) concerning their recently published definition of “post COVID-19 condition”, commonly … Continue reading

Posted in News | Tagged , , , , | 1 Comment

Research review: Pain-related post-exertional malaise in ME/CFS & FM

Pain-related post-exertional malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: a systematic review and three-level meta-analysis, by Ellen E Barhorst, Alex E Boruch, Dane B Cook in Pain Medicine, October 2021 [DOI:10.1093/pm/pnab308]   Review abstract: Objective: Myalgic Encephalomyelitis/Chronic Fatigue … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Research review: Pain-related post-exertional malaise in ME/CFS & FM

Diagnostic test research: Saliva fatigue biomarker for severe ME/CFS

Saliva fatigue biomarker index as a marker for severe myalgic encephalomyelitis/ chronic fatigue syndrome in a community based sample, by Leonard A Jason, John Kalns, Alicia Richarte, Ben Z Katz, Chelsea Torres in Fatigue: Biomedicine, Health & Behavior, October 27, 2021 … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Diagnostic test research: Saliva fatigue biomarker for severe ME/CFS

Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare

WAMES asks NHS Wales:  Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare   Poor healthcare for many with ME/CFS in Wales A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: … Continue reading

Posted in News | Tagged , | 1 Comment

NICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change

NICE 2021 ME/CFS guideline –  Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative   On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are … Continue reading

Posted in News | Tagged | Comments Off on NICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change

Research review: CFS & cardiovascular disease

Chronic Fatigue Syndrome and cardiovascular disease: JACC state-of-the-art review, by Benjamin H Nateleson, Danielle L Brunjes, Donna Mancini in Journal of the American College of Cardiology Vol 78, #10, pp 1056–1067, Sep 7, 2021   Review highlights ME/CFS, a clinical entity … Continue reading

Posted in News | Tagged , , , , | Comments Off on Research review: CFS & cardiovascular disease