Tag Archives: children

Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS

Paediatric ME/CFS (from Voices from shadows website)  Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading

Posted in News | Tagged , , , | Comments Off on Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS

Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Childhood sleep & adolescent CFS/ME

Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME

Research abstract: Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis, by FK Neale, TY Segal, DS Hargreaves in Archives of Disease in Childhood Vol 103, Suppl … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME

Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading

Posted in News | Tagged , , , , , , , , , , , , | Comments Off on Childhood sleep & adolescent CFS/ME

Measuring school functioning in students with CFS

Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Measuring school functioning in students with CFS

Guidelines for children with ME now available to download

Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , , , | Comments Off on Guidelines for children with ME now available to download

Sleep quality in adolescents with CFS/ME

Research abstract: Sleep quality in adolescents with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), by EK Josev, ML Jackson, B Bei, J Trinder, A Harvey, C Clarke, K Snodgrass, A Scheinberg, SJ Knight in J Clin Sleep Med. 2017 Sep 15; 13(9):1057-1066 … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Sleep quality in adolescents with CFS/ME

Health care resource use by patients before & after a diagnosis of CFS/ME

Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): A clinical practice research datalink study, by Simon Collin, Inger Bakken, Irwin Nazareth, Esther Crawley, & Peter D. White in BMC Family Practice. 18 20017 Research abstract: Background: Our … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Health care resource use by patients before & after a diagnosis of CFS/ME

OMF resources for parents of children with ME/CFS

The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on OMF resources for parents of children with ME/CFS

Practical management of CFS or ME in childhood

Article abstract: Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood, by A Brigden, M Loades M, A Abbott, J Bond-Kendall, E Crawley in Archives of Disease in Childhood [Preprint June 28 2017] Full article behind paywall Paediatric chronic fatigue syndrome … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Practical management of CFS or ME in childhood