Tag Archives: children
Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME
Research abstract: Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis, by FK Neale, TY Segal, DS Hargreaves in Archives of Disease in Childhood Vol 103, Suppl … Continue reading
Childhood sleep & adolescent CFS/ME
Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading
Measuring school functioning in students with CFS
Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading
Guidelines for children with ME now available to download
Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading
Sleep quality in adolescents with CFS/ME
Research abstract: Sleep quality in adolescents with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), by EK Josev, ML Jackson, B Bei, J Trinder, A Harvey, C Clarke, K Snodgrass, A Scheinberg, SJ Knight in J Clin Sleep Med. 2017 Sep 15; 13(9):1057-1066 … Continue reading
Health care resource use by patients before & after a diagnosis of CFS/ME
Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): A clinical practice research datalink study, by Simon Collin, Inger Bakken, Irwin Nazareth, Esther Crawley, & Peter D. White in BMC Family Practice. 18 20017 Research abstract: Background: Our … Continue reading
OMF resources for parents of children with ME/CFS
The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading
Dr Tuller challenges lack of ethical review of Dr Crawley’s school absence study
Virology blog post, by David Tuller, 28 August 2017: Trial By Error: No Ethical Review of Crawley School Absence Study This is a complicated post. Here are the key points. The rest is details: *Professor Esther Crawley and co-authors claimed … Continue reading
Practical management of CFS or ME in childhood
Article abstract: Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood, by A Brigden, M Loades M, A Abbott, J Bond-Kendall, E Crawley in Archives of Disease in Childhood [Preprint June 28 2017] Full article behind paywall Paediatric chronic fatigue syndrome … Continue reading
Carers of children with ME ‘accused of fabrication’
BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading
