Author Archives: wames
Cardiff University plans research into ME/CFS using ME/CFS Biobank samples
CureME (leading research into ME) blog post: Biobank users Samples from our Biobank are available to external researchers around the globe. Making these samples available to other researchers increases the chances of achieving much-needed breakthroughs in the aetiology and treatment … Continue reading
ME awareness – in the workplace
Explaining ME in the workplace Raising awareness of ME is always a good idea – yes? But is telling others about your experience of ME always a good idea? There are many creative ways to describe to friends and family … Continue reading
Millions of parents missing millions of moments
Millions of parents Missing millions of moments Missing due to lack of research and care for people with myalgic encephalomyelitis Do not let them miss a moment more #MillionsMissing
We had lives. Now we are the #MillionsMissing.
We were dancers We were athletes We were adventurers We had careers We had plans We had dreams We had lives Now we are the #MillionsMissing
Join #MillionsMissing virtual & visibility actions, May 2019
#MillionsMissing – a global campaign for health equality A global, grassroots network for people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Join the virtual action in Wales on ME Awareness day – May 12th Sign up to show you are … Continue reading
Cognitive behavioural therapy for ME/CFS is not effective. Re-analysis of a Cochrane review
Cognitive behavioural therapy for ME/CFS is not effective. Re-analysis of a Cochrane review, by Mark Vink and Alexandra Vink-Niese in Health Psychology Open Review abstract: Analysis of the 2008 Cochrane review of cognitive behavioural therapy for chronic fatigue syndrome shows … Continue reading
Social Services can threaten families of children with Chronic Fatigue (ME)
Online blog Broadly highlights the fact that one in five children with ME are investigated by social services, with some even being forcibly placed in a hospital or foster homes, with destructive effects on their health. Social services can threaten … Continue reading
ME: a global health scandal – Stop ignoring ME video – ME Awareness week 2019
ME: a global health scandal People with ME are not asking for special treatment. We are asking for humane treatment and health equality. ME Awareness week 6th – 12th May 2019 Produced by Broken Battery, 2 May 2019 ME is … Continue reading
Epigenetic components of ME/CFS uncover potential Transposable Element activation
Epigenetic components of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Uncover potential Transposable Element Activation, by Eloy Almenar-Pérez, Tamara Ovejero PhD, Teresa Sánchez-Fito MSc, José A Espejo BSc, Lubov Nathanson PhD, Elisa Oltra PhD, in Clinical Therapeutics [Published online 23 March 2019] https://doi.org/10.1016/j.clinthera.2019.02.012 … Continue reading
Recent advances in our understanding of mast cell activation – or should it be mast cell mediator disorders?
Recent advances in our understanding of mast cell activation – or should it be mast cell mediator disorders?, by Theoharis C. Theoharides, Irene Tsilioni & Huali Ren in Expert Review of Clinical Immunology [Published online: 22 Apr 2019, https://doi.org/10.1080/1744666X.2019.1596800] … Continue reading
