Category Archives: News
Understanding ME & CFS symptoms in children – take part in research project!
Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading
Internet-delivered cognitive behaviour therapy for chronic health conditions: a systematic review & meta-analysis
Internet-delivered cognitive behaviour therapy for chronic health conditions: a systematic review and meta-analysis, by Swati Mehta, Vanessa A Peynenburg, Heather D Hadjistavropoulos in Journal of Behavioral Medicine, 1 November 2018 [Preprint] Review abstract: This systematic review and meta-analysis aims to evaluate the effectiveness of internet-delivered … Continue reading
Updated NICE guideline committee list
NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018. The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading
CFS & the somatic expression of emotional distress
Chronic fatigue syndrome and the somatic expression of emotional distress: applying the concept of illusory mental health to address the controversy, by AD Bram, KA Gottschalk, WM Leeds in J Clin Psychol. 2018 Aug 28. [Epub ahead of print] Abstract: OBJECTIVE: … Continue reading
Exercise-induce hyperalgesia, complement system & elastase activation in ME/CFS
Exercise-induce hyperalgesia, complement system and elastase activation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – a secondary analysis of experimental comparative studies, by Andrea Polli, Jessica Van Oosterwijck, Mira Meeus, Luc Lambrecht, Jo Nijs, Kelly Ickmans in Scandinavian Journal of Pain [Published Online: 2018-10-16] Research abstract: Background and aims: … Continue reading
ME: “Her life has just stopped”
ME: “Her life has just stopped” A translation of ME: “Mae ei bywyd hi jest wedi stopio” online at BBC Cymru fyw, 25 October 2018 Natalie Price, the girlfriend of Jonathan Vaughan, has been suffering from ME (Myalgic Encephalomyelitis) for … Continue reading
Does fatigue & distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents?
Does fatigue and distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents? by Maria E Loades, Katherine A Rimes, S Ali, Kate Lievesley, Trudie Chalder in Child: Care, Health and Development, 20 Oct 2018 [preprint] Research abstract: … Continue reading
The development of an instrument to assess post-exertional malaise in patients with ME & CFS
The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome, by Leonard A Jason, Carly S Holtzman, Madison Sunnquist, Joseph Cotler in Journal of Health Psychology, 24 Oct 2018 [Preprint] Research abstract: Post-exertional malaise, … Continue reading
Situation for ME patients in Wales is ‘disgraceful’ (English translation)
Situation for ME patients in Wales is ‘disgraceful’ a translation of: Sefyllfa i gleifion ME yng Nghymru yn ‘warthus’ on the BBC Cymru fyw website, 24 Oct 2018 (This translation is not definitive, it may need some tweaking!) Emma-Jayne Lloyd from … Continue reading
ME makes me grieve for my past life
BBC website, 24 Oct, 2018: ME makes me grieve for my past life An ME sufferer says she “grieved for her past life” after she was diagnosed with the condition. Millie Earp, 22, from Cardiff, was 17 when she was … Continue reading
