Category Archives: News
Curb on zero-hour care worker contracts and ‘call clipping’
Welsh Government announcement, 2 April 2018: New requirements to ensure care workers are treated fairly come into force New requirements to ensure care staff who look after people in their own homes are treated fairly and people receiving care experience the best … Continue reading
Forward ME group writes to the Science Media Centre
ME Research UK blog post, 5 April 2018: Forward-ME Group Letter – Science Media Group Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of … Continue reading
Balance deficits in CFS with & without FM
Research abstract: Balance deficits in Chronic Fatigue Syndrome with and without fibromyalgia, by Jorge M Serrador, Karen S Quigley, Caixia Zhao, Thomas Findley, Benjamin H Natelson in NeuroRehabilitation 2018;42(2):235-246 OBJECTIVE: Chronic Fatigue Syndrome (CFS) is a disorder of unknown etiology associated … Continue reading
Markers of non-coeliac wheat sensitivity in patients with ME/CFS
Research letter: Markers of non-coeliac wheat sensitivity in patients with myalgic encephalomyelitis/ chronic fatigue syndrome, by Melanie Uhde, Alyssa C Indart, Xuechen B Yu, Sophie S Jang, Roberto De Giorgio, Peter H R Green, Umberto Volta, Suzanne D Vernon, Armin Alaedini … Continue reading
Unrest at the Senedd – #TimeForUnrestWales
Unrest at the Senedd #TimeForUnrestWales On Wednesday 18th April Unrest comes to the Senedd in Cardiff Bay. This will be an opportunity to let Welsh politicians and the media know about ME and the poor state of health and social … Continue reading
Rituximab impedes natural killer cell function in CFS/ME patients
Research abstract: Rituximab impedes natural killer cell function in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients: A pilot in vitro investigation by Natalie Eaton, Hélène Cabanas, Cassandra Balinas, Anne Klein, Donald Staines and Sonya Marshall-Gradisnik in BMC Pharmacology and Toxicology 2018 19:12 [Published: … Continue reading
Dutch report on CFS downgrades CBT & GET, calls for more research
The Dutch Health Council report to their Parliament in the Hague on CFS, 19 March 2018. Report in Dutch Summary in Dutch Background Google translation of Report into English Google translation of Summary into English Google translation of Background into English The Report’s conclusions and … Continue reading
Cortene – a new drug trial & disease hypothesis for ME/CFS
Cortene In his blog, Health Rising, Cort Johnson introduces a new drug trial and hypothesis for ME/CFS. With the help of Dr Lucinda Bateman and Dr Suzanne Vernon a small drug company, Cortene, will be conducting a small proof-of-concept trial of a new … Continue reading
Forward ME Group writes to the Times: patients are ‘not simply deconditioned’
Times online letter, 22 March 2018: TREATMENT FOR PATIENTS WITH ME Sir, The article by Tom Whipple, (“Findings of £5m ME chronic fatigue study ‘worthless’,” Mar 22) highlights a long-standing problem. The National Institute for Health and Care Excellence (Nice) … Continue reading
Rethinking the treatment of CFS – a reanalysis of the PACE trial
Research abstract: Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT by Carolyn E. Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty and Bruce … Continue reading
