Category Archives: News

Acceptance and commitment therapy (ACT) for CFS

Research abstract: Background: Acceptance is understood to be an important element in coping with chronic illnesses, linked to positive outcomes such as reduced symptoms and greater quality of life. Chronic Fatigue Syndrome (CFS) is a disabling syndrome that is associated with a poor reported quality of … Continue reading

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We are the #MillionsMissing

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Cognitive processes research in CFS and cancer

Research abstract: Background: There is an abundance of research into cognitive processing biases in clinical psychology including the potential for applying cognitive bias modification techniques to assess the causal role of biases in maintaining anxiety and depression. Within the health psychology field, there is … Continue reading

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A tool for making sense of health studies

Understanding Health Research: a tool for making sense of health studies Can I trust the findings of health research? This online tool aims to guide you through a series of questions to help you review health research. The website also contains introductions to … Continue reading

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PACE trial shows patients need to scrutinise studies about their health,

BMJ blog post by Simon McGrath, 22 Sep 2016: PACE trial shows why medicine needs patients to scrutinise studies about their health Like all patients, what I want most from clinical research is treatments that work, not ones that merely … Continue reading

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Potential new way to sway the immune system

ME Global Chronicle article, by Madeline McCurry-Schmidt, Aug 2016  Found: A Potential New Way to Sway the Immune System (not specifically about ME) A new international collaboration involving scientists at The Scripps Research Institute (TSRI) opens a door to influencing … Continue reading

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Manualised protocol of integrated CBT and GET

Research abstract: BACKGROUND: Medically-unexplained chronic fatigue states are prevalent, and challenging to manage. Cognitive behavioural therapy (CBT) and graded exercise therapy (GET) are effective in clinical trials. Evaluation of delivery in a standard health care setting is rare. An integrated … Continue reading

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PACE trial results were grossly exaggerated

Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading

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Patient perceptions regarding possible changes to the name & criteria for CFS & ME

Research article abstract: For decades, researchers and patients have been debating the terms and criteria for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). This has led to considerable difficulties in clearly communicating to the public the nature of these … Continue reading

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Get your MillionsMissing twibbon

Download the #MillionsMissing twibbon. Add the #MillionsMissing filter to your photo on Facebook and Twitter!  All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest … Continue reading

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