Category Archives: News
Research project to evaluate daily activity patterns and heart rate
Newswise Stony Brook University blog post, by …, 23 June 2016: Getting to the Heart of Chronic Fatigue Syndrome Stony Brook researcher receives $1.5 million NIH grant to evaluate daily activity patterns and heart rate of those who suffer from … Continue reading
CFS following low-level radiation exposure
2 articles about the effects of low-level radiation are on the National CFIDS Foundation website at Health of Liquidators (Clean-up Workers) 20 Years after the Chernobyl explosion Chronic Fatigue Syndrome is one of the most important consequences of radioecological disaster resulting … Continue reading
PACE trial cost-effectiveness conclusions faulty
Health rising blog post, by Cort Johnson, 31 May 2016: Another Ball Drops in PACE Controversy: Cost-effectiveness Conclusions Faulty – Plus Update Some past efforts to clear up the controversies around the now notorious PACE trials have requested that the … Continue reading
Circulatory Impairment in ME
ME Advocacy Blog post extract, 14 June 2016: Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis, by Maryann Spurgin, Ph.D. Here is my proposal: For many years, I have followed and collated research on Myalgic Encephalomyelitis (ME), in particular on … Continue reading
A new approach for investigating mitochondrial DNA in ME
Research abstract: In mitochondrial research, many investigators have examined the association between mitochondrial DNA (mtDNA) variants in rare as well as common complex diseases. Previous studies at the CHM (NWU) detected three known pathogenic mtDNA variants (m.7497G>A, m.9185T>C and m.10197G>A) at … Continue reading
Complementary & alternative healthcare use by participants in PACE trial
Research abstract: Background: Chronic Fatigue Syndrome (CFS) is characterised by persistent fatigue, disability and a range of other symptoms. The PACE trial was randomised to compare four non-pharmacological treatments for patients with CFS in secondary care clinics. The aims of this sub study … Continue reading
More in-depth mitochondrial testing in ME/CFS proposed
Blog post by Cort Johnson in Health Rising forum, 20 June 2016: Researchers Call For More In-depth Mitochondrial Testing in Chronic Fatigue Syndrome (ME/CFS) More Extensive Mitochondrial Testing Proposed A letter to the editor of the BioMed Central Journal urged … Continue reading
CBT for CFS: differences in outcomes in the UK & Netherlands
Research abstract: Objective: Cognitive behaviour therapy (CBT) reduces fatigue and disability in chronic fatigue syndrome (CFS). However, outcomes vary between studies, possibly because of differences in patient characteristics, treatment protocols, diagnostic criteria and outcome measures. The objective was to compare outcomes after CBT in … Continue reading
The psychological impact of dependency in adults with CFS/ME
Research abstract: Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily … Continue reading
Altered neuroendocrine control in adolescent CFS
Research abstract: BACKGROUND: Chronic fatigue syndrome (CFS) is a common and disabling disorder, and a major threat against adolescent health. The pathophysiology is unknown, but alteration of neuroendocrine control systems might be a central element, resulting in attenuation of the … Continue reading
