Category Archives: News
Mitochondrial myopathy – differential diagnosis for ME
Research abstract: Introduction: Symptoms of mitochondrial diseases and chronic fatigue syndrome (CFS) frequently overlap and can easily be mistaken. Methods: We report the case of a patient diagnosed with CFS and during follow-up was finally diagnosed with mitochondrial myopathy by … Continue reading
ACT (Acceptance and commitment therapy) for CFS
Research abstract: Acceptance is understood to be an important element in coping and living with chronic illnesses such as diabetes and chronic pain, and increasing acceptance has been related to a number of positive outcomes such as reduced symptoms as well … Continue reading
Patients’ opinions of activity pacing
Research abstract: Objective: Despite the frequent recommendation of activity pacing as a coping strategy for patients with chronic pain and/or fatigue, pacing is interpreted in different ways and there is an absence of a widely accepted pacing scale. We have … Continue reading
Patients’ ME research priorities
Research abstract: Background: The aim of this work was to involve patients in setting future priorities for myalgic encephalomyelitis (M.E.) research. Methods: A national on-line survey was developed collecting structured and unstructured data. Respondents were asked what they considered Action … Continue reading
Effect on siblings of children with CFS/ME
Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading
Characteristics of CFS/ME sub-group who respond to Rintatolimod (Ampligen)
Research abstract: Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a debilitating disease of unknown pathogenesis consisting of a variety of flu-like symptoms including severe fatigue. Initial analysis of the use of rintatolimod (Poly I: Poly C12U), a selective TLR3 agonist, … Continue reading
UK rituximab trial fundraising total almost reached
Invest in ME has announced the latest fundraising total for the rituximab/B-cell research, which is a great boost as the research team at UCL are about to visit and discuss the subject with Dr Fluge and Professor Mella in Haukeland University Hospital, … Continue reading
Elevated autoantibodies found in CFS subgroup
Research highlights: β adrenergic and muscarinic acetylcholine receptor autoantibodies are elevated in a subset of patients with Chronic Fatigue Syndrome (CFS). Elevated autoantibodies in CFS correlate with elevated IgG1-3 subclass levels, thyreoperoxidase and ANA antibodies and T cell activation. In … Continue reading
Poor self-esteem found in adolescents with CFS
Research abstract: Background: The self and self-experience are often assumed to play an important role in adolescent patients presenting with severe somatic symptoms and bodily distress. Nonetheless, most empirical work on this subject is confined to studies of personality and … Continue reading
Severity of POT fluctuates in ME
Research abstract: Central nervous system dysfunction with myalgic encephalomyelitis (ME) has been suggested as the main cause of chronic fatigue syndrome. Fluctuation of the symptom severity and hierarchy is a characteristic feature in ME patients. The characteristics of the sympathetic … Continue reading
