Tag Archives: activity management
Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS
Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading
Video: Activity & energy management – Pacing
Dialogues for a neglected illness: Activity and energy management – Pacing The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading
Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach
Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach, Victoria Strassheim, Jenny Welford, Rob Ballantine, Julia L Newton in Auton Neurosci. 2018 Feb 22. pii: S1566-0702(17)30328-4 [Epub ahead of print] Highlights: Fatigue is a common symptom described by those … Continue reading
Efficacy of 4-steps physical activity self-regulation programme for chronic fatigue
Research highlights: 4-STEPS yielded sustained small to moderate sustained effects on self-reported fatigue severity, impact, and health-related quality of life. There were modest effects on physical activity. There were no significant effects on psychological and somatic distress. Benefits on fatigue … Continue reading
FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
MAGENTA trial – PACE for children
Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading
