Tag Archives: children
Carers of children with ME ‘accused of fabrication’
BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading
Dr Byron Hyde and ‘the terrible tale of Amy Brown’
Amy Brown is the pseudonym of an English child whose story is recounted by Dr Byron Hyde, a Canadian doctor who has been actively researching and treating people with ME for decades. Dr Hyde describes the years 9 year old ‘Amy’ spent … Continue reading
For children with ME, school education can be a grave threat
Third Force News blog post, by Lesley Scott, 19 May 2017: For children with ME, school education can be a grave threat Lesley Scott explains why the Scottish Government presumption that attending school is always best can affect the health … Continue reading
CBT for CFS/ME in children is different from CBT for depression
Discussion paper abstract: BACKGROUND: Approximately one in three children and young people with chronic fatigue syndrome (CFS/ME) also have probable depression. Cognitive behaviour therapy (CBT) has a growing evidence base as an effective treatment approach for CFS/ME and for depression … Continue reading
30% school absence due to ME in Norway
Phoenix rising forum post, 6 Feb 2017: Norwegian prime minister concerned about young ME-patients. Norwegian media have reported several places today the prime minister’s concern for young ME patients. Last year she asked Ministry of Health and Care Services to … Continue reading
Narratives of young people living with a diagnosis of CFS/ME
Thesis abstract: CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) is a distressing and potentially debilitating condition. It can also be understood as a contested condition, surrounded by controversy about its nature, causes and treatment. Previous research indicates that those affected experience this climate of contestation as a … Continue reading
Important factors to consider when treating children with CFS/ME
Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
Narratives of parents living with a child affected by CFS/ME
Research abstract: Background and Aims: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) remains a poorly understood condition, shrouded by debate, stigma, and uncertainty. Unsurprisingly, the little available research suggests that caring for a Child or Young Person (CYP) affected by the condition can be extremely challenging. … Continue reading
Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
