Tag Archives: teenagers

A qualitative study of depression in young people with CFS/ME

Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading

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Review of treatment for depression in paediatric CFS or ME

Review abstract: Objectives: At least 30% of young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) also have symptoms of depression. This systematic review aimed to establish which treatment approaches for depression are effective and whether comorbid depression mediates outcome. Setting: … Continue reading

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Obesity in adolescents with CFS

Research abstract: Objective: Identify the prevalence of obesity in patients with chronic fatigue syndrome (CFS) compared with healthy adolescents, and those identified with CFS in a population cohort. Design: Cross-sectional analysis of multiple imputed data. Setting: Data from UK paediatric CFS/myalgic encephalomyelitis … Continue reading

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A robot-avatar: easier access to education & reduction in isolation?

Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading

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Altered neural networks in adolescent CFS

Research abstract: Neural network investigations are currently absent in adolescent chronic fatigue syndrome (CFS). In this study, we examine whether the core intrinsic connectivity networks (ICNs) are altered in adolescent CFS patients. Eighteen adolescent patients with CFS and 18 aged … Continue reading

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Eating difficulties in adolescents with CFS/ME

Research abstract: BACKGROUND: An estimated 10% of children and adolescents with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience eating difficulties; however, little is known about why these difficulties develop, what the impact is or how to manage them. METHODS: Semi-structured interviews … Continue reading

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Chronic fatigue affects 1.9% of 16 year olds & is more common with family adversity

Research abstract: BACKGROUND: In the Avon Longitudinal Study of Parents and Children (ALSPAC) birth cohort, chronic disabling fatigue lasting ≥6 months affected 1.3% of 13-year-olds, was equally common in boys and girls, and became more prevalent with increasing family adversity. … Continue reading

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What matters to children with CFS/ME? devising a PROM

Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading

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Poor quality of life in young people with ME/CFS

An ME Research UK article comments on the recent research in Norway into adolescents with CFS: For such a devastating illness, there is surprisingly little information in the scientific literature about patients’ experiences of living with ME/CFS day-to-day. The few … Continue reading

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Defining recovery in children

Research abstract: Aims:  To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods:  We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading

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