Author Archives: wames
Updated NICE guideline committee list
NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018. The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading
CFS & the somatic expression of emotional distress
Chronic fatigue syndrome and the somatic expression of emotional distress: applying the concept of illusory mental health to address the controversy, by AD Bram, KA Gottschalk, WM Leeds in J Clin Psychol. 2018 Aug 28. [Epub ahead of print] Abstract: OBJECTIVE: … Continue reading
Exercise-induce hyperalgesia, complement system & elastase activation in ME/CFS
Exercise-induce hyperalgesia, complement system and elastase activation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – a secondary analysis of experimental comparative studies, by Andrea Polli, Jessica Van Oosterwijck, Mira Meeus, Luc Lambrecht, Jo Nijs, Kelly Ickmans in Scandinavian Journal of Pain [Published Online: 2018-10-16] Research abstract: Background and aims: … Continue reading
ME: “Her life has just stopped”
ME: “Her life has just stopped” A translation of ME: “Mae ei bywyd hi jest wedi stopio” online at BBC Cymru fyw, 25 October 2018 Natalie Price, the girlfriend of Jonathan Vaughan, has been suffering from ME (Myalgic Encephalomyelitis) for … Continue reading
Does fatigue & distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents?
Does fatigue and distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents? by Maria E Loades, Katherine A Rimes, S Ali, Kate Lievesley, Trudie Chalder in Child: Care, Health and Development, 20 Oct 2018 [preprint] Research abstract: … Continue reading
The development of an instrument to assess post-exertional malaise in patients with ME & CFS
The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome, by Leonard A Jason, Carly S Holtzman, Madison Sunnquist, Joseph Cotler in Journal of Health Psychology, 24 Oct 2018 [Preprint] Research abstract: Post-exertional malaise, … Continue reading
Situation for ME patients in Wales is ‘disgraceful’ (English translation)
Situation for ME patients in Wales is ‘disgraceful’ a translation of: Sefyllfa i gleifion ME yng Nghymru yn ‘warthus’ on the BBC Cymru fyw website, 24 Oct 2018 (This translation is not definitive, it may need some tweaking!) Emma-Jayne Lloyd from … Continue reading
ME makes me grieve for my past life
BBC website, 24 Oct, 2018: ME makes me grieve for my past life An ME sufferer says she “grieved for her past life” after she was diagnosed with the condition. Millie Earp, 22, from Cardiff, was 17 when she was … Continue reading
#TimeForUnrestWales in the Senedd
#TimeForUnrestWales in the Senedd – Wed 24 Oct 2018 Seven AMs accepted the invitation from Mark Isherwood AM to join people with ME and carers at an event in the Senedd, the home of the Welsh Government. More AMs expressed interest … Continue reading
ME in Wales in the media, 24 Oct 2018
Catch up with the media coverage of the ME and the #TimeForUnrestWales campaign. Wales today at 6.30pm – the item on ME starts at 15:30, and is little changed from the earlier news bulletin. In the broadcast Owen Hughes says … Continue reading