Author Archives: wames
Age Cymru Wales forecasts loneliness & isolation epidemic
WAMES is continually being made aware of the isolation people with ME can feel. Unfortunately years of limited contact with friends and family due to poor health can mean that loneliness becomes an even greater issue as people age and friends and family … Continue reading
‘Betwixt & between’ liminality in recovery stories from people with ME or CFS
Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading
Dyfed High Sheriff Awards for support groups
The Carmarthenshire ME Support Group and Cwtch-Pembrokeshire support group received awards from the High Sheriff of Dyfed for service to the community at a reception in Carmarthen on 15 February 2017. Western Telegraph, 21 Feb 2017: CWTCH Pembrokeshire’s outstanding contribution … Continue reading
Caution needed when using online prescription services
BBC news article, by Dr Faye Kirkland, 3 March 2017: Buying medications online ‘can put health at risk’ People should be wary of buying medications on the internet after an investigation found “widespread failings” at some online providers, the Care … Continue reading
Increased levels of intramuscular cytokines in patients with jaw muscle pain
Prof Julia Newton highlighted in 2015 that a high proportion of people with ME also have TMD Research abstract: BACKGROUND: The aim of this study was to investigate cytokine levels in the masseter muscle, their response to experimental tooth-clenching and … Continue reading
Review of potential causes of muscle dysfunction in ME/CFS
Review abstract: Purpose of Review: Here, we review potential causes of muscle dysfunction seen in many patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) such as the effects of oxidative and nitrosative stress (O&NS) and mitochondrial impairments together with reduced heat … Continue reading
International wheelchair day 1 March 2017
Celebrate your wheelchair on International Wheelchair day an annual day of events and activities which take place around the World when wheelchair users celebrate the positive impact a wheelchair has on their lives. International wheelchair day website Euan’s guide: … Continue reading
Brain & spinal fluid abnormalities in CFS are not affected by psychiatric comorbidity
Research highlights: As a group, CFS patients have higher brain ventricular lactate, more abnormal spinal fluid results, lower brain GSH, and reduced cerebral blood flow relative to healthy sedentary controls Psychiatric comorbidity does not influence any of these potential biological … Continue reading
Effectiveness of long-term Doxycycline treatment & CBT on fatigue severity in patients with Q Fever Fatigue Syndrome
Research abstract: Background: Approximately 20% of patients with acute Q fever will develop chronic fatigue, referred to as Q fever fatigue syndrome (QFS). The objective of this randomized controlled clinical trial was to assess the efficacy of either long-term treatment … Continue reading
Epigenetic modifications & glucocorticoid sensitivity in ME/CFS
Research abstract: Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating idiopathic disease characterized by unexplained fatigue that fails to resolve with sufficient rest. Diagnosis is based on a list of symptoms and exclusion of other fatigue-related health conditions. Despite … Continue reading
