Author Archives: wames
Impact of Coronavirus: people with chronic illness say “I feel forgotten”
Chronic Illness Inclusion Project blog post: “I feel forgotten”, by Anna Ruddock, June 1 2020 A submission to the Women and Equalities Committee about the impact of coronavirus on people with chronic illness. In April, the Women and Equalities … Continue reading
Scientists call for more European research on ME/CFS
European ME Coalition Press Release: Scientists call for more European research on ME/CFS, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). … Continue reading
Physical activity measures in patients with ME/CFS: correlations between peak oxygen consumption, the physical functioning scale of the SF-36 questionnaire, & the number of steps from an activity meter
Physical activity measures in patients with myalgic encephalomyelitis/chronic fatigue syndrome: correlations between peak oxygen consumption, the physical functioning scale of the SF-36 questionnaire, and the number of steps from an activity meter, by CMC van Campen, Peter C Rowe, Freek … Continue reading
The Health Minister, Covid-19, ME, rehabilitation & NICE
The Health Minister comments on Covid-19, ME, rehabilitation & NICE The Health Minister Vaughan Gething has replied to the letter WAMES sent to him on International ME Awareness Day highlighting the links between Covid-19, PVFS and ME, and requesting … Continue reading
The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco
The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807] Article abstract: In a … Continue reading
Metabolic dysfunction in ME/CFS not due to anti-mitochondrial antibodies
Metabolic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome not due to anti-mitochondrial antibodies, by Isabell Nilsson, Jeremy Palmer, Eirini Apostolou, Carl-Gerhard Gottfries, Muhammad Rizwan, Charlotte Dahle and Anders Rosén in Front. Med., 31 March 2020 [doi.org/10.3389/fmed.2020.00108 ] Research abstract: Metabolic profiling … Continue reading
Modeling disability: softly making the invisible visible
Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74 Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading
Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort
Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort, by Maria Elizabeth Loades, Katharine A Rimes, Trudie Chalder in Clinical Child Psychology and Psychiatry, May 22 2020 [doi.org/10.1177/1359104520918364] Research abstract: Sleep problems have … Continue reading
Review of the quality control checks performed by current genome-wide & targeted-genome association studies on ME/CFS
Review of the quality control checks performed by current genome-wide and targeted-genome association studies on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Nuno Sepulveda, Anna D Grabowska, Eliana M Lacerda, Luis C Nacul in Frontiers in Pediatrics. May 7, 2020 [doi: 10.3389/fped.2020.00293 … Continue reading
