Author Archives: wames

Clinical history segment extraction from CFS assessments to model disease trajectories

Clinical history segment extraction from Chronic Fatigue Syndrome assessments to model disease trajectories by Sonia Priou, Natalia Viani, Veshalee Vernugopan, Chloe Tytherleigh, Faduma Abdalla Hassan, Rina Dutta, Trudie Chalder, Sumithra Velupillai in Digital Personalized Health and Medicine, Vol 270, pp … Continue reading

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NICE ME/CFS Guideline to be published April 2021

NICE ME/CFS Guideline to be published April 2021   WAMES has received notification from NICE about the dates the stakeholder meetings will reconvene, and the proposed publication date of the revised ME/CFS clinical guideline.   24/6/20 Dear Stakeholder, As you … Continue reading

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Economic burden of ME/CFS to patients: comparative study

Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: comparative study, by D Araja, E Brenna, RM Hunter, D Pheby, U Berkis, A Lunga, M Murovska in Value in Health, Vol 22, Supp 3, Nov 2019, Page S909 [https://doi.org/10.1016/j.jval.2019.09.2671] … Continue reading

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Characterization of cortisol dysregulation in FM & CFS: a state-space approach

Characterization of Cortisol Dysregulation in Fibromyalgia and Chronic Fatigue Syndromes: A State-Space Approach, by Divesh Deepak Pednekar, Md. Rafiul Amin, Hamid Fekri Azgomi, Kirstin Aschbacher, Leslie J Crofford, Rose T Faghih in Published in: IEEE Transactions on Biomedical Engineering PP(99):1-1 · … Continue reading

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Epidemiological and clinical factors associated with post-exertional malaise severity in patients with ME/CFS

Epidemiological and clinical factors associated with post-exertional malaise severity in patients with myalgic encephalomyelitis/chronic fatigue syndrome, by Alaa Ghali, Paul Richa, Carole Lacout, Aline Gury, Anne-Berengere Beucher, Chadi Homedan, Christian Lavigne & Geoffrey Urbanski in Journal of Translational Medicine vol … Continue reading

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A qualitative exploration of treatment preference in paediatric randomised control trials

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading

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Post-viral fatigue in Covid-19

Post viral fatigue in Covid-19, by Karen Leslie, Dr Michelle Bull, Natalie Hilliard and Dr Nicola Clague-Baker in Frontline [Chartered Society of Physiotherapy (CSP) Journal] June 2020 no. 6   Excerpt: What is post viral fatigue syndrome (PVFS), and how … Continue reading

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“The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME.

“The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, by Amberly Brigden, Alison Shaw, Rebecca Barnes, Emma Anderson, Esther Crawley in Health … Continue reading

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Skeletal muscle weakness often occurs in patients with ME/CFS

Skeletal muscle weakness often occurs in patients with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome ME/CFS, by Yves Jammes, Frederique Retornaz in Journal of Experimental Neurology Vol 1, #2, pp 35-39, May 14, 2020   Highlights: Altered muscle function often occurs in ME/CFS … Continue reading

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Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness

European Parliament Press Release: Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness  18 June 2020 An estimate of 2 million Europeans affected by the disease ME/CFS is still poorly understood and consequently, underdiagnosed . Increasing awareness … Continue reading

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