Author Archives: wames
ME/CFS: A case-based Learning Module for doctors & nurses
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A case-based learning module, by Stephen J Gluckman, in Medscape Education Family Medicine, 23 April 2020 Target Audience and Goal Statement: This activity is intended for primary care physicians, nurses, nurse practitioners (NPs), and other healthcare … Continue reading
Intravenous cyclophosphamide in ME/CFS. An open-label phase II study
Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study by Ingrid G Rekeland, Alexander Fosså, Asgeir Lande, Irini Ktoridou-Valen, Kari Sørland, Mari Holsen, Karl J Tronstad, Kristin Risa, Kine Alme, Marte K Viken, Benedicte A Lie, Olav … Continue reading
Margaret, Countess of Mar, & ME advocate, retires
ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading
A potential antigenic mimicry between viral & human proteins linking ME/CFS with autoimmunity: the case of HPV immunization
A potential antigenic mimicry between viral and human proteins linking Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with autoimmunity: the case of HPV immunization, by Jody Phelan, Anna D Grabowska, Nuno Sepulveda in Autoimmunity Reviews Vol 19, no. 4, April 2020, 1. Introduction … Continue reading
Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness
Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020 DRILL Blog post: Energy impairment and disability inclusion … Continue reading
Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center
Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260] Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading
Energy management education & occupation-related outcomes in adults with chronic diseases: a scoping review
Energy management education and occupation-related outcomes in adults with chronic diseases: a scoping review, by Janine F Farragher , Sarbjit V Jassal, Sara McEwen, Helene J Polatajko in Brit J Occ Ther, April 10, 2020 [doi.org/10.1177/0308022620904327] Article abstract: Introduction: Fatigue is … Continue reading
Underfunding of biomedical research into Myalgic Encephalomyelitis is unjustified, say MEPs
PETI European News Press Release: Underfunding of biomedical research into Myalgic Encephalomyelitis is unjustified, say MEPs 30 April 2020 An estimate of 2 million Europeans affected by the disease EU research remains fragmented and lacks coordination ME/CFS is still … Continue reading
Solving the ME/CFS criteria & name conundrum: the aftermath of IOM
Solving the ME/CFS criteria and name conundrum: The aftermath of IOM, by Leonard A Jason, Madeline Johnson in Fatigue: Biomedicine, Health & Behavior, 28 Apr 2020 Article abstract: In 2015, the Institute of Medicine (IOM) proposed a new name … Continue reading