Tag Archives: Alison Shaw

A qualitative analysis of teachers’ experiences of CFS/ME

Posted on 01/14/2021 by wames

‘It’s a medical condition … you need to support as much as possible’: A qualitative analysis of teachers’ experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), by Amberly Brigden, Alison Shaw, Esther Crawley in BMC Pediatrics Vol 21, #1, p 6, January 4, 2021 … Continue reading →

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CFS/ME in children aged 5 to 11 years: a qualitative study

Posted on 10/29/2020 by wames

Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: a qualitative study, by Amberly Brigden, Alison Shaw, Emma Anderson, Esther Crawley in Clinical Child Psychology and Psychiatry Oct 2020 [doi:10.1177/1359104520964528]   Research abstract: Treatments for paediatric chronic fatigue … Continue reading →

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“The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME.

Posted on 06/22/2020 by wames

“The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, by Amberly Brigden, Alison Shaw, Rebecca Barnes, Emma Anderson, Esther Crawley in Health … Continue reading →

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on 01/23/2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Posted on 11/18/2019 by wames

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading →

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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Posted on 12/13/2018 by wames

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading →

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Important factors to consider when treating children with CFS/ME

Posted on 02/06/2017 by wames

Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading →

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