Tag Archives: paediatric ME

ME/CFS diagnosis & management in young people: a primer

Review article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: a Primer, by Peter C. Rowe,  Rosemary A. Underhill,  Kenneth J. Friedman,  Alan Gurwitt,  Marvin S. Medow,  Malcolm S. Schwartz,  Nigel Speight,  Julian M. Stewart,  Rosamund Vallings and  Katherine S. … Continue reading

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Dr Byron Hyde and ‘the terrible tale of Amy Brown’

Amy Brown is the pseudonym of an English child whose story is recounted by Dr Byron Hyde, a Canadian doctor who has been actively researching and treating people with ME for decades. Dr Hyde describes the years 9 year old ‘Amy’ spent … Continue reading

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CBT for CFS/ME in children is different from CBT for depression

Discussion paper abstract: BACKGROUND:   Approximately one in three children and young people with chronic fatigue syndrome (CFS/ME) also have probable depression. Cognitive behaviour therapy (CBT) has a growing evidence base as an effective treatment approach for CFS/ME and for depression … Continue reading

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Important factors to consider when treating children with CFS/ME

Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading

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Children’s experiences of CFS/ME

Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading

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A qualitative study of depression in young people with CFS/ME

Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading

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Review of treatment for depression in paediatric CFS or ME

Review abstract: Objectives: At least 30% of young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) also have symptoms of depression. This systematic review aimed to establish which treatment approaches for depression are effective and whether comorbid depression mediates outcome. Setting: … Continue reading

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Can ME/CFS be diagnosed in young children?

Dr David S Bell, eminent American paediatrician, talks about the difficulty of diagnosing ME/CFS in children. Excerpt from: ME/CFS in children Diagnosis in Children For the most part ME/CFS can only be diagnosed in adolescents and older individuals. Children below … Continue reading

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Effect on siblings of children with CFS/ME

Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading

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ME in children – Specialist lectures on video

Seminar on children and young people with ME/CFS – 2014 On November 12, 2014 the National Association for ME in Sweden organized a seminar on children and young people with ME/CFS. The seminar was conducted in cooperation with RME Stockholm and … Continue reading

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