Tag Archives: Norway

Norwegian Rituximab studies update

Helse Bergen blog post, 29 Sep 29017: RituxME B-lymphocyte depletion using the anti-CD20 antibody rituximab (Mabthera®) in Myalgic Encephalopathy/Chronic Fatigue Syndrome (“RituxME”) ​RituxME is a multicentre study conducted in five study centres in Norway: the Oncology Department at Haukeland University … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Norwegian Rituximab studies update

Adults’ experiences of the illness trajectory in post-infectious fatigue syndrome in Norway

Research abstract: From good health to illness with post-infectious fatigue syndrome: a qualitative study of adults’ experiences of the illness trajectory, by Eva Stormorken, Leonard A. Jason and  Marit Kirkevold in BMC Family Practice 2017 18:49  [PNorwayublished: 27 March 2017] Background: Municipal drinking water contaminated with the parasite Giardia lamblia in Bergen, Norway, … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Adults’ experiences of the illness trajectory in post-infectious fatigue syndrome in Norway

UK Rituximab trial collaboration between Norway & UK featured on BBC

BBC Look East video clip, 26 January 2017: Research in Norwich could offer ME/CFS breakthrough  Researchers in Norwich are teaming up with researchers from Norway to collaborate on ME/CFS research. The researchers say they believe that ME is reversible, and … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on UK Rituximab trial collaboration between Norway & UK featured on BBC

Experiences of GP continuity among women with CFS/ME in Norway

Research abstract: Background:  Continuity of care is important for patients with chronic illness in need of coordinated healthcare services from multiple providers. Little is known about how patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience continuity of GP care. This study explores how … Continue reading

Posted in News | Tagged , | Comments Off on Experiences of GP continuity among women with CFS/ME in Norway

Diagnosis & symptoms of CFS/ME in children in Norway

Research abstract: Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a complex condition. Causal factors are not established, although underlying psychological or immunological susceptibility has been proposed. We studied primary care diagnoses for children with CFS/ME, with children with another hospital … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Diagnosis & symptoms of CFS/ME in children in Norway

New rituximab trial results from Norway

Research abstract: Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) is a disease of unknown etiology. We have previously suggested clinical benefit from B-cell depletion using the monoclonal anti-CD20 antibody rituximab in a randomized and placebo-controlled study. Prolonged responses were then demonstrated in … Continue reading

Posted in News | Tagged , , , , , | Comments Off on New rituximab trial results from Norway

A robot-avatar: easier access to education & reduction in isolation?

Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on A robot-avatar: easier access to education & reduction in isolation?

Unexpected findings & promoting monocausal claims, a cautionary tale

Article abstract: Stories of serendipitous discoveries in medicine incorrectly imply that the path from an unexpected observation to major discovery is straightforward or guaranteed. In this paper, I examine a case from the field of research about chronic fatigue syndrome (CFS). In Norway, … Continue reading

Posted in News | Tagged , , , , | Comments Off on Unexpected findings & promoting monocausal claims, a cautionary tale

The social media experiences of long-term patients with ME in Norway

Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading

Posted in News | Tagged , , , | Comments Off on The social media experiences of long-term patients with ME in Norway

Evaluation of a Norwegian approach to investigating suspected CFS/ME

Article introduction: BACKGROUND: Chronic fatigue is a frequently occurring problem in both the primary and specialist health services. The Department of Neurology at Haukeland University Hospital has established a standard assessment for patients referred with suspected CFS/ME. This study reports … Continue reading

Posted in News | Tagged , , , | Comments Off on Evaluation of a Norwegian approach to investigating suspected CFS/ME