Category Archives: News

Edwyn’s ME Lockdown

Posted on 05/10/2020 by wames

ME Awareness Week:         Edwyn’s thoughts on ME   This has ruined my life and I am disgusted that not enough money goes into research for ME.                                                                                                   Edwyn, 15 years old, Mid Wales Edwyn’s ME Lockdown view all day, every … Continue reading →

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ME/CFS: A case-based Learning Module for doctors & nurses

Posted on 05/06/2020 by wames

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A case-based learning module, by Stephen J Gluckman, in Medscape Education Family Medicine, 23 April 2020   Target Audience and Goal Statement: This activity is intended for primary care physicians, nurses, nurse practitioners (NPs), and other healthcare … Continue reading →

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Intravenous cyclophosphamide in ME/CFS. An open-label phase II study

Posted on 05/04/2020 by wames

Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study by Ingrid G Rekeland, Alexander Fosså, Asgeir Lande, Irini Ktoridou-Valen, Kari Sørland, Mari Holsen, Karl J Tronstad, Kristin Risa, Kine Alme, Marte K Viken, Benedicte A Lie, Olav … Continue reading →

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Margaret, Countess of Mar, & ME advocate, retires

Posted on 05/04/2020 by wames

ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading →

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A systematic review of neurological impairments in ME/CFS using neuroimaging techniques

Posted on 05/04/2020 by wames

A systematic review of neurological impairments in myalgic encephalomyelitis/ chronic fatigue syndrome using neuroimaging techniques, by Rebekah Maksoud, Stanley du Preez, Natalie Eaton-Fitch, Kiran Thapaliya, Leighton Barnden, Hélène Cabanas, Donald Staines, Sonya Marshall-Gradisnik in PLoS One 2020 Apr 30;15(4) [doi:10.1371/journal.pone.0232475.   … Continue reading →

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A potential antigenic mimicry between viral & human proteins linking ME/CFS with autoimmunity: the case of HPV immunization

Posted on 05/02/2020 by wames

A potential antigenic mimicry between viral and human proteins linking Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with autoimmunity: the case of HPV immunization, by Jody Phelan, Anna D Grabowska, Nuno Sepulveda in Autoimmunity Reviews Vol 19, no. 4, April 2020,   1. Introduction … Continue reading →

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Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness

Posted on 05/01/2020 by wames

Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020   DRILL Blog post: Energy impairment and disability inclusion … Continue reading →

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Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Posted on 05/01/2020 by wames

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260]   Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading →

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Energy management education & occupation-related outcomes in adults with chronic diseases: a scoping review

Posted on 05/01/2020 by wames

Energy management education and occupation-related outcomes in adults with chronic diseases: a scoping review, by Janine F Farragher , Sarbjit V Jassal, Sara McEwen, Helene J Polatajko in Brit J Occ Ther, April 10, 2020  [doi.org/10.1177/0308022620904327]   Article abstract: Introduction: Fatigue is … Continue reading →

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