Tag Archives: long Covid

World ME Alliance writes to WHO re long COVID definition

Will the World Health Organization’s long COVID definition help or hinder?   WAMES has joined other members of the World ME Alliance in writing to the World Health Organization (WHO) concerning their recently published definition of “post COVID-19 condition”, commonly … Continue reading

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Dr Muirhead: “the medical profession have massively underestimated hidden disease”

What long COVID awareness means for people with chronic illnesses   Dr Nina Muirhead is quoted in an article by Rachel Charlton-Dailey on the Verywell Health website, September 29, 2021   Hopeful for more acceptance and understanding There is hope … Continue reading

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Research: A comprehensive examination of severely ill ME/CFS patients

A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading

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Research review: Redox imbalance links COVID-19 & ME/CFS

Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome, by Bindu D Paul, Marian D Lemle, Anthony L Komaroff, Solomon H Snyder in PNAS August 24,  2021 118 (34); [doi.org/10.1073/pnas.2024358118]   Review abstract: Although most patients recover from acute COVID-19, … Continue reading

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Insights from ME/CFS may help unravel the pathogenesis of post-acute COVID-19 syndrome

Insights from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome may help unravel the pathogenesis of post-acute COVID-19 syndrome, by Anthony L Komaroff, W Ian Lipkin in Trends in Molecular Medicine, 7 June 2021 [doi.org/10.1016/j.molmed.2021.06.002]   Highlights: In some people, the aftermath of acute … Continue reading

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£5m for post-viral long COVID. £0 for post-viral ME/CFS!

Welsh Government: Services supporting people to recover from COVID-19 (none for ME/CFS)   On 15th June 2021 the Health Minister, Eluned Morgan MS, announced in the Senedd that £5 million would be given to the NHS “to develop primary and … Continue reading

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Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS

Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh   Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading

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UK Gov told: measure the percentage of people who developed CFS/ME after being infected with covid-19

Risk that debilitating fatigue after covid-19 might last years: Evidence report for the House of Lords Select Committee on Risk Assessment and Risk Planning (RSK0037), by Caroline Kamau, Birkbeck (University of London) January 27, 2021   The House of Lords … Continue reading

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Medical school education on ME

Medical school education on Myalgic Encephalomyelitis, by Nina Muirhead, John Muirhead, Grace Lavery and Ben Marsh in Medicina 2021, 57(6), 542; [doi.org/10.3390/medicina57060542] 28 May 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis)   Research abstract: … Continue reading

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Video: Long COVID, Post Viral Fatigue Syndrome & ME/CFS

A new video from Broken Battery describes the overlap in symptoms between Long COVID, Post-Viral Fatigue Syndrome and ME/CFS.   Video link: https://www.youtube.com/watch?v=_LOvXta5ZaA Excerpts from video: Research that monitored people over time found that many people with Post Viral Fatigue … Continue reading

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