Tag Archives: paediatric ME

Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS

Paediatric ME/CFS (from Voices from shadows website)  Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading

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Pediatric CFS: Dr Crawley’s perspective

Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press  Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading

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OMF resources for parents of children with ME/CFS

The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading

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Practical management of CFS or ME in childhood

Article abstract: Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood, by A Brigden, M Loades M, A Abbott, J Bond-Kendall, E Crawley in Archives of Disease in Childhood [Preprint June 28 2017] Full article behind paywall Paediatric chronic fatigue syndrome … Continue reading

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Carers of children with ME ‘accused of fabrication’

BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading

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ME/CFS diagnosis & management in young people: a primer

Review article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: a Primer, by Peter C. Rowe,  Rosemary A. Underhill,  Kenneth J. Friedman,  Alan Gurwitt,  Marvin S. Medow,  Malcolm S. Schwartz,  Nigel Speight,  Julian M. Stewart,  Rosamund Vallings and  Katherine S. … Continue reading

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Dr Byron Hyde and ‘the terrible tale of Amy Brown’

Amy Brown is the pseudonym of an English child whose story is recounted by Dr Byron Hyde, a Canadian doctor who has been actively researching and treating people with ME for decades. Dr Hyde describes the years 9 year old ‘Amy’ spent … Continue reading

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CBT for CFS/ME in children is different from CBT for depression

Discussion paper abstract: BACKGROUND:   Approximately one in three children and young people with chronic fatigue syndrome (CFS/ME) also have probable depression. Cognitive behaviour therapy (CBT) has a growing evidence base as an effective treatment approach for CFS/ME and for depression … Continue reading

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A clinical approach to ME/CFS in adolescents & young adults – video talk by Dr Peter Rowe

Solve ME/CFS Initiative webinar video, 17 March 2017 A Clinical Approach to ME/CFS in Adolescent and Young Adults: A Practical Primer, by Peter Rowe MD, director of the Chronic Fatigue Clinic and professor of pediatrics at Johns Hopkins Children’s Center … Continue reading

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