Author Archives: wames

Children with ME need relevant science, not pressure to do more, more, more

Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Children with ME need relevant science, not pressure to do more, more, more

Which treatments help people with ME?

An Australian blogger with ME has produced a list of  treatments that have been suggested over the years as of possible help to people with ME. This is not an exhaustive list, nor is it necessarily a recommendation. To help us in … Continue reading

Posted in News | Tagged | Comments Off on Which treatments help people with ME?

Natural course of chronic disabling fatigue in adolescents

Research abstract Objective:   Little is known about persistence of or recovery from chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adolescents. Previous studies have small sample sizes, short follow-up or have focused on fatigue rather than CFS/ME or, equivalently, chronic fatigue, which … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Natural course of chronic disabling fatigue in adolescents

What happens when you have a disease doctors can’t diagnose

TED Summit video, filmed June 2016, of a talk by film maker Jennifer Brea: What happens when you have a disease doctors can’t diagnose  January 2017 Five years ago, American Jennifer Brea became progressively ill with myalgic encephalomyelitis, a debilitating illness that severely … Continue reading

Posted in News | Tagged , , , , , | Comments Off on What happens when you have a disease doctors can’t diagnose

Life stories & photo-elicited diaries of people with severe ME/CFS

Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded in medical and social uncertainty. This thesis examines connections between language, space and representations of becoming diagnosed and living with the often severe effects of this chronic illness. Dominant medical and political institutions, often … Continue reading

Posted in News | Tagged , , | Comments Off on Life stories & photo-elicited diaries of people with severe ME/CFS

ME/CFS presents a medical education challenge in the US

Dr Kenneth Friedman submits evidence to the US Chronic Fatigue Syndrome Advisory Committee (CFSAC) which he hopes will stimulate a long overdue, effective, national ME/CFS Medical Education program: Introduction: ME/CFS presents a medical education challenge in the United States.[1]   Perhaps … Continue reading

Posted in News | Tagged , , | Comments Off on ME/CFS presents a medical education challenge in the US

Estimating the disease burden of ME/CFS in the US

Article abstract: At the National Institutes of Health (NIH), burden of disease is an important factor in funding decisions along with such factors as scientific opportunity, the quality of the science, and the interest of researchers. Recent studies have quantified the … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Estimating the disease burden of ME/CFS in the US

A systematic review of the association between fatigue & genetic polymorphisms

Review abstract: Fatigue is one of the most common and distressing symptoms, leading to markedly decreased quality of life among a large subset of patients with a variety of disorders. Susceptibility to fatigue may be influenced by genetic factors including … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on A systematic review of the association between fatigue & genetic polymorphisms

Children’s experiences of CFS/ME

Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Children’s experiences of CFS/ME

Discussion of Fluge’s finding of key metabolic enzyme impairment in ME/CFS

TV2 interview with Dr Øystein Fluge on his latest research on ME/CFS – in Norwegian with English subtitles. Begins with a man who is very severely affected by ME. (11 minutes 23 seconds)    Watch video   Medscape Medical news article, 13 January 2017: … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Discussion of Fluge’s finding of key metabolic enzyme impairment in ME/CFS