Author Archives: wames
The search for a non invasive diagnostic test for ME/CFS
Solve ME/CFS Initiative blog post, 13 January 2013: Non-Invasive Diagnostic Test Project Seeks to Detect ME/CFS This week, we highlight the Cathleen J. Gleeson PhD Fund and our collaborative partnership with the University of Washington on diagnostic testing in ME/CFS. This … Continue reading
Children with ME need relevant science, not pressure to do more, more, more
Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading
Which treatments help people with ME?
An Australian blogger with ME has produced a list of treatments that have been suggested over the years as of possible help to people with ME. This is not an exhaustive list, nor is it necessarily a recommendation. To help us in … Continue reading
Natural course of chronic disabling fatigue in adolescents
Research abstract Objective: Little is known about persistence of or recovery from chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adolescents. Previous studies have small sample sizes, short follow-up or have focused on fatigue rather than CFS/ME or, equivalently, chronic fatigue, which … Continue reading
What happens when you have a disease doctors can’t diagnose
TED Summit video, filmed June 2016, of a talk by film maker Jennifer Brea: What happens when you have a disease doctors can’t diagnose January 2017 Five years ago, American Jennifer Brea became progressively ill with myalgic encephalomyelitis, a debilitating illness that severely … Continue reading
Life stories & photo-elicited diaries of people with severe ME/CFS
Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded in medical and social uncertainty. This thesis examines connections between language, space and representations of becoming diagnosed and living with the often severe effects of this chronic illness. Dominant medical and political institutions, often … Continue reading
ME/CFS presents a medical education challenge in the US
Dr Kenneth Friedman submits evidence to the US Chronic Fatigue Syndrome Advisory Committee (CFSAC) which he hopes will stimulate a long overdue, effective, national ME/CFS Medical Education program: Introduction: ME/CFS presents a medical education challenge in the United States.[1] Perhaps … Continue reading
Estimating the disease burden of ME/CFS in the US
Article abstract: At the National Institutes of Health (NIH), burden of disease is an important factor in funding decisions along with such factors as scientific opportunity, the quality of the science, and the interest of researchers. Recent studies have quantified the … Continue reading
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
