Tag Archives: teenagers

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Posted on 05/01/2020 by wames

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260]   Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading →

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Self-management of CFS in adolescents

Posted on 03/23/2020 by wames

Self-Management of Chronic Fatigue Syndrome in adolescents, by Katherine Rowe, Amanda Apple and Fiona McDonald in Paediatric Neurology [Working Title] Published online: February 28th 2020 [DOI: 10.5772/intechopen.91413]   Book chapter abstract: Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading →

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Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?

Posted on 02/11/2020 by wames

Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?, by Lauren Stephanie Jones, Emma Anderson, Maria Loades, Rebecca Barnes, Esther Crawley in Clin Psychol Psychother. 2019 Dec 15. [doi: 10.1002/cpp.2417]   Research abstract: Comorbid depression … Continue reading →

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on 01/23/2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

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Paediatric patients with ME/CFS value understanding & help to move on with their lives

Posted on 01/13/2020 by wames

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading →

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Paediatric CFS patients’ & parents’ perceptions of recovery

Posted on 12/17/2019 by wames

Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019   Research abstract: What is known about the … Continue reading →

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Survey of the experiences of children & young people with ME for NICE

Posted on 09/16/2019 by wames

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading →

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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review

Posted on 09/09/2019 by wames

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading →

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Posted on 08/16/2019 by wames

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading →

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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Posted on 08/02/2019 by wames

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading →

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