Author Archives: wames
Covid-19 or ME crash? – Kay’s story
ME Awareness Week: Covid-19 or ME crash? – Kay’s story ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading
This is International ME Awareness Day – 12 May 2020
May 12th is International ME Awareness Day Myalgic Encephalomyelitis is the most common disease people have never heard of! Estimated number of people with ME: Wales 13,000 UK 250,000 World 17-24 million Every year, for a week surrounding May 12th, … Continue reading
More to experience during Lockdown- Karen & Mike’s ME story
ME Awareness Week: More to experience during Lockdown – Karen & Mike’s ME story I live with my husband in mid-Wales and we both have ME, having met because of it 23 years ago (through the ME Singles Group) … Continue reading
Patients at higher risk of developing ME after COVID-19 diagnosis
ME Awareness Week University of Leicester blog post: Patients at higher risk of developing ME after COVID-19 diagnosis, by Dr Nicola Clague-Baker, 6 May 2020 Patients who have had coronavirus could be at higher risk of developing Myalgic Encephalomyelitis … Continue reading
Edwyn’s ME Lockdown
ME Awareness Week: Edwyn’s thoughts on ME This has ruined my life and I am disgusted that not enough money goes into research for ME. Edwyn, 15 years old, Mid Wales Edwyn’s ME Lockdown view all day, every … Continue reading
Role of EBV-dUTPase in modulating neuro-immune dysfunction associated with ME/CFS
Role of EBV-dUTPase in Modulating Neuro-immune Dysfunction Associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Research Thesis Presented in partial fulfillment of the requirements for graduation with research distinction in the undergraduate colleges of The Ohio State University by Julia Hasik, April … Continue reading
ME/CFS: A case-based Learning Module for doctors & nurses
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A case-based learning module, by Stephen J Gluckman, in Medscape Education Family Medicine, 23 April 2020 Target Audience and Goal Statement: This activity is intended for primary care physicians, nurses, nurse practitioners (NPs), and other healthcare … Continue reading
Intravenous cyclophosphamide in ME/CFS. An open-label phase II study
Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study by Ingrid G Rekeland, Alexander Fosså, Asgeir Lande, Irini Ktoridou-Valen, Kari Sørland, Mari Holsen, Karl J Tronstad, Kristin Risa, Kine Alme, Marte K Viken, Benedicte A Lie, Olav … Continue reading
Margaret, Countess of Mar, & ME advocate, retires
ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading
