Author Archives: wames
No Lockdown fun for Melanie, just bedbound with ME
ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading
WAMES asks Health Minister for combined healthcare strategy for Covid-19 survivors, PVFS & ME
ME Awareness Week: WAMES asks Health Minister for combined healthcare strategy for Covid-19 survivors, PVFS & ME WAMES has written to the Health Minister and other officials on International ME Awareness day to draw attention to the links between … Continue reading
The origin of International ME Awareness Day
The origin of International ME Awareness Day – May 12th Excerpt from: MAY 12th International Awareness Day “If a cause and cure are to be found for ME/CFS, FM, MCS and related illnesses in the near future, government and … Continue reading
Poem: A nurse with ME
ME Awareness Week: A nurse with ME – a poem by L Mair Jones As we acknowledge the contribution of nurses on International Nurses Day, we remember that nurses too can be confined to home with a virus. … Continue reading
35 year-old living in aged care reveals what life is like inside during this pandemic (Aus)
ME Awareness week: Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic From SBS News Insight (Australia) by Ketra Wooding, 9 May 2020: Ketra has been forced to live in an aged care facility due … Continue reading
‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME
ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading
Video: I got a virus, I didn’t die, but I never recovered
ME Awareness Week: I got a virus, I didn’t die, but I never recovered #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading
Covid-19 or ME crash? – Kay’s story
ME Awareness Week: Covid-19 or ME crash? – Kay’s story ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading
This is International ME Awareness Day – 12 May 2020
May 12th is International ME Awareness Day Myalgic Encephalomyelitis is the most common disease people have never heard of! Estimated number of people with ME: Wales 13,000 UK 250,000 World 17-24 million Every year, for a week surrounding May 12th, … Continue reading
