Author Archives: wames

With severe ME, everything is cut off from possibility

Posted on 08/08/2019 by wames

by Greg Crowhurst, Stonebird

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Severe ME: complex, unpredictable symptoms

Posted on 08/08/2019 by wames

Stonebird – the lived experience of severe ME

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The frail teenager set to spend all of her summer holidays in her bedroom

Posted on 08/08/2019 by wames

Wales online blog post: The frail teenager set to spend all of her summer holidays in her bedroom, by Mark Smith, 6 August 2019 Lola Brandrick, 13, from Swansea, is crippled by pain and is constantly exhausted While all her … Continue reading →

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Severe ME day- 8 August 2019

Posted on 08/08/2019 by wames

Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading →

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Metabolic features of Gulf War illness [similarities & differences to CFS]

Posted on 08/06/2019 by wames

Metabolic features of Gulf War illness, by Robert K Naviaux, Jane C Naviaux, Kefeng Li, Lin Wang, Jonathan M Monk, A Taylor Bright, Hayley J Koslik, Janis B Ritchie, Beatrice A Golomb in PLoS ONE 14(7): e0219531 [Published: July 26, 2019] … Continue reading →

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CFS – an illness without disease?

Posted on 08/05/2019 by wames

CFS – an illness without disease? In a recent paper psychologist Prof Michael Sharpe and sociologist Monica Greco discuss CFS as an ‘illness without disease’ in comparison to cancer, a known disease, and argued that, while illness-focused treatments like CBT … Continue reading →

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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Posted on 08/02/2019 by wames

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading →

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Acceptance, fatigue severity & self-reported physical activity in individuals with CFS/ME

Posted on 08/01/2019 by wames

Acceptance, fatigue severity and self-reported physical activity in individuals with chronic fatigue syndrome/myalgic encephalomyelitis, by Neil Chapman, Suzanne Broadbent, Rosanne Coutts in Fatigue: Biomedicine, Health & Behavior, Volume 7, 2019, Issue 2, Pages 102-115 [Preprint June 28, 2019]   Abstract: … Continue reading →

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Advances in understanding the pathophysiology of CFS

Posted on 07/30/2019 by wames

Advances in understanding the pathophysiology of Chronic Fatigue Syndrome, by Anthony L Komaroff in JAMA [Preprint July 5, 2019]   Viewpoint extracts: When does an illness become a disease? When the underlying biological abnormalities that cause the symptoms and signs of the … Continue reading →

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Pathological mechanisms underlying ME/CFS

Posted on 07/19/2019 by wames

Pathological mechanisms underlying Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Daniel Missailidis, Sarah Annesley, Paul Fisher in Preprints  [Published  online: 16 July 2019] doi: 10.20944/preprints201907.0196.v1   Review abstract The underlying molecular basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is not well understood. … Continue reading →

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