Author Archives: wames
#TimeForUnrestWales – the Cabinet Secretary for Health’s plans for ME & CFS
#TimeForUnrestWales the Cabinet Secretary for Health’s plans for ME & CFS In early May WAMES wrote to the Cabinet Secretary for Health, Vaughan Gething, expressing concern for the slow progress in implementing the Task & Finish Group Report’s Recommendations and … Continue reading
Westminster Hall debate could be a ‘turning of the tide’ for ME
#MEAction blog post, 21 June 2018: Westminster Hall debate could be a ‘turning of the tide’ for ME Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for … Continue reading
Circadian rhythm abnormalities & autonomic dysfunction in patients with CFS/ME
Circadian rhythm abnormalities and autonomic dysfunction in patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Trinitat Cambras, Jesús Castro-Marrero, Maria Cleofé Zaragoza, Antoni Díez-Noguera, José Alegre in PLOS one 13:6[Published: June 6, 2018] Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) patients frequently show autonomic symptoms which may … Continue reading
Vote for Unrest!
Independent Lens Audience Award Unrest is in the running for the 2017-18 Independent Lens Audience Award in the States! Voting for the Audience Award opens today Monday, June 18th and ends on Friday, June, 29th, 2018 at 1 PM … Continue reading
C-Reactive protein response in patients with Post-Treatment Lyme Disease symptoms versus those with ME/CFS
Research letter: C-Reactive Protein Response in Patients With Post-Treatment Lyme Disease Symptoms Versus Those With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Melanie Uhde, Alyssa Indart, Brian A Fallon, Gary P Wormser, Adriana R Marques, Suzanne D Vernon, and Armin Alaedini in Clinical Infectious diseases, 2018;XX(00):2–2 To the Editor—There is substantial overlap in symptoms, … Continue reading
Two-year follow-up of impaired Range of Motion in [adolescents with] CFS
Two-Year Follow-Up of Impaired Range of Motion in Chronic Fatigue Syndrome,by Peter C. Rowe, Colleen L. Marden, Marissa A. K. Flaherty, Samantha E. Jasion, Erica M Cranston, Kevin R. Fontaine, and Richard L. Violand in J Pediatr 2018 [Published online 1 June 2018] Objective: To measure changes in range … Continue reading
UK Biobank data demonstrates an inherited component to ME/CFS
ME/CFS Research review: Analysis of data from 500,000 individuals in UK Biobank demonstrates an inherited component to ME/CFS, by Simon McGrath, 11 June 2018 With a guest blog by Professor Chris Ponting and colleagues. UK Biobank – a national biobank different … Continue reading
Do you shop with Amazon? Choose WAMES as your charity for free donations
You shop. Amazon gives, with a smile. Amazon will donate 0.5% of the net purchase price of eligible purchases to the charitable organisation of your choice. Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same … Continue reading
A psychiatrist’s perspective: Medically unexplained syndromes: IBS, FM & CFS
Article abstract: Medically unexplained syndromes: irritable bowel syndrome, fibromyalgia and chronic fatigue, by Jason Luty in BJPsych Advances [Published online: 6 June 2018] This is a review of three of the more common medically unexplained syndromes that present for treatment to liaison … Continue reading
Poor self-reported sleep quality & health-related quality of life in patients with CFS/ME
Research abstract: Poor self-reported sleep quality and health-related quality of life in patients with chronic fatigue syndrome/myalgic encephalomyelitis, by Jesús Castro‐Marrero, Maria C. Zaragoza, Sergio González‐Garcia, Luisa Aliste, Naia Sáez‐Francàs, Odile Romero, Alex Ferré Tomás Fernández de Sevilla, José Alegre in … Continue reading