Category Archives: News
Brain imaging study crowdfunding request – Dr Michael VanElzakker
Massachusetts General Hospital press release, 11 November 2017: Support research into Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) Goal: USD $29,900 / £22,854 About the Campaign: Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) represents a challenging intersection of immunology, neurology, endocrinology, and other fields. Investigating such … Continue reading
What it’s like to travel again after 14 years of being housebound
The Telegraph blog post, by Juliette Llewellyn, 10 Nov 2017: What it’s like to travel again after 14 years of being housebound It was the summer of 1995. I was 24 and in the GP surgery waiting room about to … Continue reading
A comparison of case definitions for ME & CFS
Research abstract: A Comparison of Case Definitions for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, by Madison Sunnquist, Leonard A Jason, P Nehrke, Ellken M Goudsmit in Chronic Dis Manag. 2017;2(2). pii: 1013. Epub 2017 May 21 Many professionals have described the … Continue reading
I made a film from my bed to prove my illness is real
BBC news article, 9 Nov 2017: I made a film from my bed to prove my illness is real Five years ago, Jennifer Brea was struck down by ME (Myalgic Encephalomyelitis), and found herself bed-bound, a prisoner in her own … Continue reading
Heart rate variability (HRV) an underused ME/CFS/FM management tool
Health rising treatment resources blog post, by Karmin, 24 Oct 2017: Karmin continues her series on heart rate variability (HRV) testing. Everyone concerned with pacing – a subject everyone with ME/CFS/FM has reason to be concerned with – will find … Continue reading
Blood cells in CFS are drained of energy
New Scientist article, by Andy Coghlan, 3 Nov 2017: Blood cells in chronic fatigue syndrome are drained of energy Blood cells in people with CFS seem as listless as it can make people feel Thirteen years ago, Cara Tomas was … Continue reading
Norwegian Rituximab studies update
Helse Bergen blog post, 29 Sep 29017: RituxME B-lymphocyte depletion using the anti-CD20 antibody rituximab (Mabthera®) in Myalgic Encephalopathy/Chronic Fatigue Syndrome (“RituxME”) RituxME is a multicentre study conducted in five study centres in Norway: the Oncology Department at Haukeland University … Continue reading
Unrest film now available for download!
Jennifer Brea’s film Unrest is now available for download. iTunes $14.99 (£11.32) Amazon Prime US $14.99 Vimeo on Demand £14.99 Google Play £9.99 It will also be available on DVD in December. Proceeds from the sale of Unrest will be reinvested into the … Continue reading
Treating autism and ME/CFS: could one drug help both?
Open Medicine Foundation blog post, by Cort Johnson, 19 October 2017: Treating autism and ME/CFS: could one drug help both? Autism is one of the most difficult conditions to treat. A neurodevelopmental disorder that typically strikes before the age of … Continue reading
