Category Archives: News
Sleep patterns among patients with chronic fatigue
Research Abstract: Sleep patterns among patients with chronic fatigue: A polysomnography-based study, by Evelina Pajediene, Indre Bileviciute-Ljungar and Danielle Friberg in The Clinical Respiratory Journal [Version online: 2 AUG 2017] Objectives: The purpose of this study was to detect treatable sleep … Continue reading
ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading
Report of the Community Symposium on the Molecular Basis of ME/CFS
The first Open Medicine Foundation Community Symposium on the Molecular Basis of ME/CFS On August 12, 2017, the Community Symposium on the Molecular Basis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) convened ~ 300 researchers, clinicians, patients, caregivers, families, and advocates … Continue reading
Scientific progress stumbles without a valid case definition
OUP blog post, by Leonard A. Jason, August 20th 2017: Scientific progress stumbles without a valid case definition Current estimates from the Centers for Disease Control and Prevention (CDC) of the number of people in the United States with chronic … Continue reading
Contesting the psychiatric framing of ME/CFS
Article abstract: Contesting the psychiatric framing of ME/CFS, by Helen Spandler, Meg Allen in Social Theory & Health, v 15 pp 1–15 [Published Online: 16 August 2017] ME/CFS is a medically contested illness and its understanding, framing and treatment has been the subject of heated … Continue reading
‘The most common disease you’ve never seen’: how one woman turned her illness into a life-changing film
Telegraph article, by Alan Vincent, 11 August 2017: ‘The most common disease you’ve never seen’: how one woman turned her illness into a life-changing film Jennifer Brea was 28 when she was bedridden with a high fever. As she … Continue reading
The ME/CFS Symposium at Stanford – watch the video
The ME/CFS Symposium held at Stanford on Saturday August 12th 2017 can be viewed online: https://youtu.be/s7bBMXQSmuM The start times of each speaker: Open Medicine Foundation’s Community Symposium is now available to view online for anyone who was unable to watch … Continue reading
The Mail online asks: Why are doctors and patients still at war over ME?
Mail online post, by Jerome Burns, 15 August 2017: Why are doctors and patients still at war over M.E.? How the best treatment for the debilitating condition is one of the most bitterly contested areas in medicine Myalgic encephalomyelitis can … Continue reading