Author Archives: wames
Symptom frequency & development of a generic functional disorder symptom scale suitable for use in studies of patients with IBS, FMS, or CFS
Symptom frequency and development of a generic functional disorder symptom scale suitable for use in studies of patients with irritable bowel syndrome, fibromyalgia syndrome or chronic fatigue syndrome, by Michael E Hyland, Alison M Bacon, Joseph W Lanario, Anthony F … Continue reading
With severe ME, everything is cut off from possibility
by Greg Crowhurst, Stonebird
Severe ME: complex, unpredictable symptoms
Stonebird – the lived experience of severe ME
The frail teenager set to spend all of her summer holidays in her bedroom
Wales online blog post: The frail teenager set to spend all of her summer holidays in her bedroom, by Mark Smith, 6 August 2019 Lola Brandrick, 13, from Swansea, is crippled by pain and is constantly exhausted While all her … Continue reading
Severe ME day- 8 August 2019
Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading
CFS – an illness without disease?
CFS – an illness without disease? In a recent paper psychologist Prof Michael Sharpe and sociologist Monica Greco discuss CFS as an ‘illness without disease’ in comparison to cancer, a known disease, and argued that, while illness-focused treatments like CBT … Continue reading
MAGENTA trial comment: ‘Targeting activity levels in ME/CFS
Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading
Acceptance, fatigue severity & self-reported physical activity in individuals with CFS/ME
Acceptance, fatigue severity and self-reported physical activity in individuals with chronic fatigue syndrome/myalgic encephalomyelitis, by Neil Chapman, Suzanne Broadbent, Rosanne Coutts in Fatigue: Biomedicine, Health & Behavior, Volume 7, 2019, Issue 2, Pages 102-115 [Preprint June 28, 2019] Abstract: … Continue reading
Advances in understanding the pathophysiology of CFS
Advances in understanding the pathophysiology of Chronic Fatigue Syndrome, by Anthony L Komaroff in JAMA [Preprint July 5, 2019] Viewpoint extracts: When does an illness become a disease? When the underlying biological abnormalities that cause the symptoms and signs of the … Continue reading
